Dementia through the disability lens

Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…

Optimism, Resilience and your Attitude

As a long time optimist with an already high level of personal and professional resilience, brought up in a dysfuncitonal family where alcohol and mental illness were rampant, and never talked about, I have had to work on my resilience to maintain my optimism. This quote from Lou Holtz resonates with me, “Your talent determines…

Brain Health, 2 D-words and HOPE

Since my own diagnosis of a younger onset dementia 13 years ago, I continue to be disturbed by the lack of recognition of dementia as a disability and lack of proactive support to live with dementia. People newly diagnosed with dementia already have their hope taken away at the time of diagnosis, so to have…

Dementia: a major cause of disability

In June 2019, Dementia Alliance International, held the first Side Event at the Conference of State Parties (CoSP) on the Convention on the Rights of Persons with Disabilities (CRPD) ever to be hosted specifically focused on dementia as a major cause disability, and our rights under the CRPD. This is important in the context of brain health.…

SCOPE Australia Communication Access

Over the last decade or so, organisations, large charities, businesses, even the World Health Organisation, as well as many local councils and governments have been saying they support and promote inclusive communities for everyone. Some go as far as saying they provide training for them. In the dementia sector they are referred to as Dementia…

Dementia, disAbility and the CRPD

I’ve become increasingly frustrated that academics, service providers, advocacy organisations, dementia consultants and health care professionals refuse to include in their work, and therefore our services, that dementia is a major cause of disability and dependence globally (WHO). A few others are starting to feel my pain, and Daniela Greenwood today made a comment to…

More on the realities of advocacy

A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…

Spaced Repetition

For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…