The discourse of suffering has long been a topic of lived/living experience dementia advocates and activists. Most people who’ve followed me here will know I have been very vocal about it, and how it is harmful to people living with a dementia diagnosis at any age. I presented on the topic on the power of…
Following on from my recent short blog about the book and mini-series, Dopesick, I am writing about having an existential crisis… For many years, and with each new year now, I’ve had an increasing feeling of pessimism about the lack of change from my activism, or the advocacy and activism of so many others, especially…
Following the free Dementia Rehabilitiation e-Course I was involved ih developing, now being hosted by Dementia Training Australia, it is great to share another step towards supporting people with dementia to remain active and engaged in their (our) communities. It is even more important to people with dementia and their care partners and families who…
In the world of mental illness, and of dementia, people are systematically locked up i.e. physically restrained, and chemically restrained. If you have dementia, even worse, you are segregated from all others, remembering of course, the only others this is done to without consent, are convicted criminals. Check out not only the video, but the…
As persistently found in past blogs, I don’t (and defintiely no longer) blog regularly! Anyway, whilst searching for one specific to living, not only dying from dementia, I started reading old blogs, and decided to post this one today, from my Living Beyond Dementia site. We are all born with a death sentence, so there…
Taking the Pedal Off the Metal: When Should Older Adults Stop Driving? Published by NIH News in Health, October 2021 “… some health conditions common with aging may make it riskier to get behind the wheel. Stiffer joints and weaker muscles can make it harder to steer or brake safely. Eye diseases and some medications…
This draft blog was sitting in my draft folder, written a few years ago as part of observing a Brain health Awareness Month series. Inspired by Wendy Mitchell, I’ve been trying to reingnite my habit of daily, or at least, a more regular writing habit, and today, it seemed appropriate to talk about the impact…
As I return to more regular writing and posting on my website, which is helping me to regain my own inner equilibrium, and sense of purpose, as the narrative therapy aspect of journalling has been restored. Every day, I continue to read others words using the various disability techniques now required for reading, and for…
The Chief Executive Officer at Women’s Community Shelters, Annabelle Daniel OAM, wrote an interesting post on LinkedIn recently, which began with Albert Einstein’s quote: ‘The definition of insanity is doing the same thing over and over and expecting different results.’ With the greatest of respect and with very much love for the fierce and wonderful…
The summary below and a link to the full article titled “What Happens in the Brain When We Imagine the future” highlights to me, the impact of lost hope, after being Prescribed Disengagement when first diagnosed with dementia. Many years ago, I trademarked that term, after advice it would be plagiarised if I didn’t! Sadly,…
Life is most certainly an interesting ride and always one where perspective is helpful, which I have gained much more than I bargined for lately! For the last almost 14 years, I’ve increasingly felt like I’ve been at war. In contrast to what’s happening in the Ukraine, clearly I’m not. But I witnessed something today…
It has been many years since I trademarked my term, Prescribed Disengagement®, yet, there are still many people without dementia who continue with the 20th Century view and management of dementia. My medical specialist (a registered, experienced neurologist specialising in dementia and migraines) advised me after the initial diagnosis that there was “no treatment for…
It is a new year, so I am wishing you all a very happy, healthy and productive 2022. Oddly, I still feel like we just celebrated the New Millenium New Year… Anyway, I have not been active on my own website, for a host of reasons of which most are best left unsaid, but I…
I was recently interviewed on The Alex Tremble Show which focuses on helping leaders increase their influence, grow their networks, and reach their career goals. This interview was a lot of fun and allowed me to share some of the best career advancement and leadership advice I have learned over the years. It was also…
It is September, which in the world of dementia advocacy, is referred to as World Alzheimer’s Month or Dementia Awareness Month (DAM), or even World Dementia Month. This name change has come about, to ensure inclusion of those who do not have a diagnosis of Alzheimer’s disease, but some other kind of dementia. It is…
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