The symptoms of dementia seem to be regularly washing some of my abilities away, as if at sea, and many of them never quite return. These changes mean I am constantly revising my Bucket list, as some of the things I once wanted to do, are no longer dementia friendly, and some things no longer…
I’m with Socrates on this, as it seems to me that real knowledge is about knowing that you don’t really know anything. I do a lot of thinking about my thinking, and am constantly delving into the recesses of my mind to try to…
I started blogging to record my world. My blog now also tries to highlight the human and personal costs of a diagnosis of dementia, the significant financial impact to individuals and families, and responds to the current status of age appropriate resources and services, or lack thereof, for people diagnosed with younger onset dementia and…
This blog is a rambling discussion of life inside my heart. There are days when writing this blog has become a burden, but I continue to push myself as I firmly believe it is the right thing to do and that it is one of my ‘positive interventions for dementia’ that is helping. Yesterday I just could…
Another day of wondering what the hell happened to my brain! It is also a struggle today to be bothered writing a blog, or even getting out of bed. Sometimes I jump out of bed early as that is the only way to stay motivated to keep on with fighting against dementia, even though it would…
An analysis of LinkedIn members suggests it is possible your name is affecting your career prospects. The analysis revealed shortened or monosyllabic names, such as Bob, Jack, Bruce and Fred, are the most popular names among male CEOs. Whereas for women, the opposite appears true, with names such as Deborah, Sally, Cynthia and Carolyn more…
With the diagnosis of a terminal illness, mortality gets to sit at your table, right next to the knife and fork, up close and personal, whispering messages that you might die much sooner than you thought. You do not get to continue to view death from the large platform called life, but from the edge of…
The loneliness of illness and aging can be emotionally debilitating. The isolation, the fear, the reduced intimacy; sharing a room with a stranger in a nursing home, then being made to eat at a table full of strangers, in a huge room full of more strangers. Having someone undress you and put you to bed,…
On national television recently I heard a woman who had been retrenched from her job make the comment I have lost the sense of who I am. This was very relevant to me as having to give up my paid employment, because of the symptoms of dementia, was very difficult. No-one ever asked me how it…
My blog today is to link you to a remarkable award-winning essay by Grace Kearney. Through the Looking Glass: Understanding the World of the Alzheimer’s Patient The waiting room could belong to a dentist’s office. There are bright lights and comfortable chairs and plenty of People magazines. But the vacant expressions of those waiting makes…
OMG, how exciting is this, my first email blog post!!! Or how much I need to get a life some of you might be saying about now? Not a lot to say for this test blog, other than I’ve left my new email footer up, so you can let me know what you think of…
Today, I was feeling brain drained and not up to writing a blog, until I found the following responses sent to me by someone I have met who works in aged and dementia care. I have kept up with your ordeals of late and also read Jane Sherwin’s response in congratulating you for speaking out…
The second part of this blog is a short story I wrote some time ago about a boy with Asperger’s Syndrome, inspired by a strip in Comic Strip IQ. Asperger’s Syndrome was not recognised until 1944. It was first posted on a page called Stories, which I have just recently removed as my Daily blog has become the…
“If the writing is honest it cannot be separated from the man [person] who wrote it.” Tennessee Williams There is not much to say on my blog tonight as the words have escaped me due to a mild case of shock. I was nearly run over by a car again tonight, a much closer call…
Lately I have connected with many blogs of writers and poets, and read their stories and poems with awe. Some of them also write about how they have always wanted to write, always wanted to be a writer, which I connect strongly with too. As a child I was a prolific reader, reading up to 4 -5 books each…
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