The real price of a diagnosis of dementia is endemic and systemic DISCRIMINATION, caused by IGNORANCE and STIGMA. In every area, people with dementia are being denied the right to contribute. People with dementia are being discriminated against, and their rights are being violated by the very people who claim to be working for us.…
My website and Daily Digest or blog has grown legs, and is now being referred to as a resource for a variety of dementia training organisations or other sites. It is exciting and empowering, and also gratifying it is seen as useful, but with this comes a certain amount of pressure to ‘perform’! Some time…
Some time ago, I wrote ‘dementia is awkward to live with’. The thing that stands out in that phrase for me now is ‘to live with’, as I suspect this is a significant key to remaining positive. When first diagnosed, I was told to “give up work, give up study, and start living for the…
Todays blog is just a picture, to give my global friends who have not yet been to visit Australia an idea of how big it is! We don’t generally ride kangaroos to school or have them running around in the city street, except in our capital city Canberra, where the city is set amongst a…
Recently I have written a lot of blogs about what is means from a personal perspective to lose ones memory or ability to recall, so thought I’d add a simple explanation of memory loss in dementia, from the Alzheimer’s Australia website. “One of the main symptoms of dementia is memory loss. We all forget things…
Maybe that is what my blog has become for me, as I’m still struggling with having not properly published my blog from a week ago! I do seem to gauge, they same way as we checked the rain every day on the farm, how well I am doing. I know my husband and some of…
This is my second blog post today, making up for a day I accidentally missed; I am feeling quite annoyed with myself because I didn’t actually post the blog I wrote for Saturday 18th August! Yes, I know, my mantra is, Did anyone die? And if not, then it isn’t really a problem!!‘ It doesn’t always…
I’m reviewing a method of research called Autoethnography, which I am leaning about and thinking about, and whether my blog is a form of it, in a non-academic sort of way. Wikipedia says Autoethnography is a form of self-reflection and writing that explores the researcher’s personal experience and connects this autobiographical story to wider cultural, political, and…
A very short blog today, as I am too angry to write something constructive. If I posted what I have written so far, it would be unfair to myself, and possibly to some others. But suffice to say, it is about yet another instance of a person with dementia being made to look incapable of being…
I’ve had two compliments on the new look of my blog, so thank you Eliza and Pete for that. It is always pleasing to hear positive remarks, but I’m sure there’ll be some who prefer the old format, or who hate both. As with a landslide election, it is hard to please everyone all of…
Dementia represents the end of dreaming, a long and unforgiving one way odyssey into obscurity, clouded in a thick and unforgiving fog. I wrote that some time ago, and in many ways still feel the same. There are many days when I am tempted to detest having dementia and the disabilities it is inflicting on me, and I…
It has been another day of dementia getting in my way more than I like and not having the capacity to complete a blog, and in my search for something else, I found this lovely piece within an old email highlighting the naivety and simplicity of the very young. It is the best I can do…
Some days I write on my private blog titled What the hell happened to my brain. Today, I am once again frustrated with and perplexed about the state of my office. Hence the reason this blog is titled What the hell happened to my office (again!!!). It is only recently that I filed everything covering my desk,…
Jeff Goins wrote in his newsletter recently, “The problem with “too much” is it’s not enough. Not for some people. Too much tweeting, too much talking, too much selling — these are all subjective, determined by someone else’s preference and worldview. What feels like an overwhelming series of broadcasts to one person is near silence…
Is Web 2.0 and user-generated content the ultimate realisation of participatory democracy, and does it bring about benefits for societies and the world beyond its entertainment value? This is a question I have been exploring for some years, and so I have decided to bore you with my research about it. I researched and wrote…
You must be logged in to post a comment.