Home from the UK

It seems like I’ve been away for weeks, rather than just six days. We have covered some ground, both physically and emotionally, from meeting imaginary friends to old ones. The range of emotions has been a roller coaster of highs and lows, as the joy of friendship, overshadowed at times by the sadness of grief…

Dementia and children

This last week was the third funeral of a younger person with dementia. I only knew Deb in the mid and later stages of her disease, but have become very close with her husband Fred, who has been one very amazing husband and BUB for his beloved. Sadly, Deb had to live in aged care in the…

Riding the storm of grief

Rest in Peace dear Deb Tanner… Yesterday was the third death of another friend with younger onset dementia. We will attend her funeral over the next few days, and mourn her loss, and support her family and friends, and each other as best we can. With three deaths in as many weeks, it seems I am currently experiencing a…

Reactions to dementia

When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion,…

Stand up and speak out…

Recently I posted Jennifer Bute’s story of being diagnosed with dementia. A couple of her quotes really stood out to me. The first quote is about compensating for the symptoms of dementia: ‘To compensate, I became ruthlessly efficient,  writing everything down as soon as I had spoken to the patient and   following up referrals immediately. However, I…

Christmas, grief, dementia and remembering

Having lost my mother in law to ovarian cancer in 2005, it was a sad first Christmas without my father in law. I can recall his and our tears that first Christmas without her. We spent it with my parents, partly because they are elderly now and we are lucky to still have them, and partly…

The power of touch

Published this week in DPS News was another inspiring article. Dementia: power of touch Wednesday, 14th November 2012 In Health & Wellness “A new approach to caring for people with advanced dementia is improving the quality of life for those who can no longer move and have limited capacity to communicate. University of Western Sydney…

On death and dying

I’ve published parts of the last two paragraphs of this blog before, but felt it worthy of re-blogging. Death and dying is a part of life, and the bonus of being given the possibility of a more finite time to live is that it does make you think very deeply about your life. Yes, I do believe it is…

Remember the children

My blog today was to be about what assets I still have, and the things my advocacy and blog are achieving, but after reading Remember the children in the Australian Ageing  Agenda , I felt it too important a topic not to add this as my blog for today. It is not just after the…

Emily Brontë, grieving and dementia

I’ve been reading some Emily Brontë poems lately, and have thought about grieving and dementia in relation to her poem Remembrance. The danger of grieving is that the dead can become more real to you than the living, and you can love them more in death than when they were alive, somehow take more notice of…

Farewell to my father in law

Farewell Dad. We have family and friends attending the funeral for my father in law today, and yesterday my dear husband and I farewelled him privately at the funeral home. My husband and best friend, who is Dad’s eldest son, also has the same name, the 3rdgeneration to have been named Peter Watt, and all…

Eulogies and funerals

Writing the Eulogy and funeral service for someone you love is quite the emotional roller coaster ride. On the weekend we made plans to bury my father in law later this week, and have been given the job of writing the Eulogy and Funeral Service. Not stepping on toes is challenging. Being inclusive of everyone is…

Life inside my heart

This blog is a rambling discussion of life inside my heart. There are days when writing this blog has become a burden, but I continue to push myself as I firmly believe it is the right thing to do and that it is one of my ‘positive interventions for dementia’ that is helping. Yesterday I just could…