Home from the UK

It seems like I’ve been away for weeks, rather than just six days. We have covered some ground, both physically and emotionally, from meeting imaginary friends to old ones. The range of emotions has been a roller coaster of highs and lows, as the joy of friendship, overshadowed at times by the sadness of grief…

Dementia and children

This last week was the third funeral of a younger person with dementia. I only knew Deb in the mid and later stages of her disease, but have become very close with her husband Fred, who has been one very amazing husband and BUB for his beloved. Sadly, Deb had to live in aged care in the…

Riding the storm of grief

Rest in Peace dear Deb Tanner… Yesterday was the third death of another friend with younger onset dementia. We will attend her funeral over the next few days, and mourn her loss, and support her family and friends, and each other as best we can. With three deaths in as many weeks, it seems I am currently experiencing a…

Reactions to dementia

When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion,…

Stand up and speak out…

Recently I posted Jennifer Bute’s story of being diagnosed with dementia. A couple of her quotes really stood out to me. The first quote is about compensating for the symptoms of dementia: ‘To compensate, I became ruthlessly efficient,  writing everything down as soon as I had spoken to the patient and   following up referrals immediately. However, I…