Blah blah blah

Some days I can feel my brain thinking, but all I can hear is blah blah blah… This could be the worst or best blog I have ever written, or somewhere in between! Blah blah blah is where my little grey cells are at, and if I had a real human visitor, I suspect the…

Feelings about dementia

After reading Kay Bransfords blog I don’t understand why you are so upset today, I responded with my own feelings about dementia, and whether a PWD can cause others to feel duress. In reality, no-one cannot cause another person to respond or react a certain way. You cannot cause a healthy person to respond or react a certain way.…

“Oh, but you’re just like me.”

Many times a day I walk around in circles at home, wondering what I had been doing, or what I was going to do. It is not quite confusion, but more like a vagueness caused by forgetfulness. My brain used to be so sharp. I used to have about 12 television screens going on at…

Louis Theroux: Extreme Love – Dementia

In case you don’t realise Dementia is an awful disease, and can’t understand why people in the early stages of dementia and their loves ones fear what is ahead, watch this video. It is worthy of a being my second blog today. It also shows the absolute depth of human love and committment by those people who love and…

Inside my heart: a poem

My heart is drifting upwards Held only by a fragile piece of string Floating high amongst the clouds A balloon, about to burst from pain.   One end of the string, tied securely to my heart The other end held firmly by many sets of hands My true love, my boys and my friends Gently and lovingly…

Resilience and the human spirit

The resilience of the human spirit is something I would love to study further, and it always amazes me how people withstand multiple crisis or illnesses and get back up with a fighting spirit. I’ve volunteered for organisations helping people who have endured extreme, and multiple losses and traumas, people who could well choose to…

Lori La Bey and Richard Taylor

Thinking of Richard Taylor and the hideous onslaught on his body as he is facing chemotherapy, radiotherapy and then radical surgery for oesophageal cancer, one wonders how much the human body and spirit can withstand. He is not alone around the world, as the wonderful Lori La Bey has proven with her tribute radio show…

Another poem…

My unseen disappearing world By Kate Swaffer © 2012   Days alone with dementia Laughter and love Tragedy and sadness Memory loss Playing cards alone Grief, tears, shock Humiliation and stigma Dancing Daring Keeping secrets Engagement and inspiration Hysterical and life changing Moments lost in time   Note: I somehow lost a whole blog today,…

Marriage vows

When home at my parents home for Christmas, I found a copy of The Vows on the fridge, given to my mother in the last few years by my father. There was not a lot of openly displayed affection in our home when I was a child; it was not that there was no love,…

The home straight…

Whilst I did not complete the NaNoWriMo challenge in November this year, I have been working on Kick off 2012 with Project 366, a challenge thrown out to bloggers using WordPress in December last year. The challenge was to write a new blog for every day in 2012. I didn’t create a new blog, but…

Christmas, grief, dementia and remembering

Having lost my mother in law to ovarian cancer in 2005, it was a sad first Christmas without my father in law. I can recall his and our tears that first Christmas without her. We spent it with my parents, partly because they are elderly now and we are lucky to still have them, and partly…

More on not remembering

I’ve been reading a novel called Minding Frankie by Maeve Binchy, which it turns out others confirm I have already read but no matter, it was a pleasant light read, and not too many words to have to look up! And it was so light, it didn’t matter that often I couldn’t remember the story…

Merry Christmas

Wishing you all a wonderful day with your families and friends. I hope the day is filled with more love than you have ever felt, and creates memories you will always remember. Take lots of photos and videos just in case! For those of us living with Mr Dementia in our families, may he take a…

Toughen Up Princess

There are days when the saying Toughen Up Princess is almost the only thing that keeps me going! My friends Jacinta and Craig taught me to say it, and now it has become a permanent part of my daily routine. Not in a bad way, but as a way of telling myself to remember there are…

Horse whispering and dementia care

Tina Hackel is a horse whisperer and blogs at Horsewhispering@Dr.Alzheimer : A Primary Caregiver’s reports to her support group. She cared for her husband Alex until his death from dementia, probably of the Alzheimer’s type. She started following my blog last night, and as I wandered over to read hers, I was inspired by this quote from…