In my blog yesterday I talked about missing things, missing the parts of my memory that are becoming or have become erased, and this has brought out lots of comments, some sent privately ( requests not to post them to my blog), and others who are happy to have them seen globally. I decided to respond on my daily blog rather than individually, but I want to thank you one and all for your words of support. To remind you of how important a memory is, to allow you to see into my innermost thoughts, and therefore my soul, is my goal. To instruct you on what it is like inside the mind of a person with dementia, so that you may more completely understand us is part of why I write. To bring about tears as you learn to more fully understand my loss, and then for you to share these things with me is empowering and reminds me of the love and goodness in the world. Pity and sympathy are not part of my goal list, but I do love your support. Whatever you might say won’t trivialise or demean me, but rather makes me think. For me to write in ways that make it seem as if I don’t have dementia or memory loss is as confusing for me as it is for some of you. Almost every moment of every day I question if I really have it. Not the times when I am confused or lost or can’t remember things, but every single second in between. Why is it I can still do some things so well, remember some things and not others? I do know though that most things I do now take much longer, need much more consideration, and sometimes I have to ask for help. I do know there are parts of my world that have disappeared from my memory forever and my life has changed in ways that are sometimes difficult to live with. Only at an autopsy can it be completely confirmed someone has dementia, so no wonder many of us feel confused about it some of the time!

I know sometimes I fail in my support and love for you but I never mean to and never try to. Sometimes I may trivialise you but I never mean to. This is one of the things I think and worry about when to help and when help hinders. It is a fine line to walk. I love you.
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My darling husband, Thank you for your global words of support. I know you never mean to trivialise me, and do still understand the fine line between help and hinder (although sometimes now it escapes me!). Please do not worry too much as what we have the most of, our unending love and loyalty for each other, is enough. I love you. xxx
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