Blogging about dementia has been one hell of a ride! So far, it has provided my husband and I with incredible support, but also occasionally some distress. It’s been interesting thinking about the last few days through the night. I always look in the mirror once I have been able to put aside the hurt or feelings of self-righteousness (yes, most of us get them when we are challenged!!), and have decided to explore more about Ageism and if I am accidentally writing that way. I definitely don’t feel like I am ageist, but hell, one never knows, especially with dementia as half the time I have trouble remembering how to make a cup of tea. There are many other topics I am in the process of exploring, and so much more self discovery. So it is onwards and upwards as there is no way I am going to give in or give up, or allow the sometimes negative feelings I have following some of the more challenging responses make me stop, at least for now. I’ve come across a few new (to me) dementia blogs, plus some I’ve been following for a while, that I find valuable and felt it worth sharing here. Of course, if I could work out how to set up a blog roll on my site, I would!! I don’t have time to read them every day, but try to get to them at least weekly. I follow many other interesting and inspirational blogs, which I will also add to my blog roll when I do work out how to set it up. Here is one article worth adding again My Dad’s Dementia Changed My Life and the various links to blogs and valuable websites about dementia. I know I’ve missed a few out, but can’t work out how to find them on my dashboard, so please add yours if you have a dementia specific one or I am following you and have missed you out, or any others you think the global dementia community would find valuable.
Dementia – Department of Health, UK
Alzheimer’s Disease International
Younger Onset Dementia Association
The Mayo Clinic Alzheimer’s Blog
Dementia Advocacy and Support Network (DASNI)
National Alzheimer’s Association (USA)
Frontier: Neuroscience Research Australia
Dear Kate,
I suppose whenever we advocate strongly for something, there will always be a pushback somewhere from someone who does not agree with what we do. So take heart from your supporters, and don’t mind the detractors. I appreciate that you advocate for persons with dementia, and you have opened my caregiver eyes to so much in the world of dementia I had not known about. Thank you.
FS
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This blog The Hampster within you by Bob De Marco talks about the hampster wheel, the one that carers and others can get off of, but people with dementia simply cannot… something even I forget when I am giving myself a hard time.
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