This week I was asked to provide some information about one of DAI’s founding members, the late Richard Taylor Ph.D. I headed to my files (word and emails) simply titled: Richard Taylor. It was an opportunity to reflect when not feeling hopeless, as it’s often Richard who I turn to when I want to give up…
I have learned a lot of lessons in my life, with many to learn I am sure, but perhaps none so important as this one from knowing Richard Taylor. Mostly, Richard taught me to live beyond the diagnosis of dementia; stop crying, dismiss the PLOM (Poor Little Old Me) disease I had after the diagnosis, and to…
Dementia Alliance International (DAI) is an advocacy and support organisation, of by and for people with dementia that I am involved in is seeking the support of more volunteers. Volunteering is rewarding, enjoyable, and a lot of fun. To live better than expected and to run this group, we need your help. About four of our Board members, and some…
A number of people with dementia, or caring for loved ones with dementia have been discussing and reviewing the language being used in the sector. The LGBTI community have their own document on the use of what is appropriate and what is offensive language, and this goes some way to assisting us in the development of…
To whom I may concern “The Real World of Alzheimer’s” Published on Mar 22, 2013 To Whom I May Concern is an interactive theatre project, where the stories of people with dementia are respectfully gathered and become the basis for the script of a play. The play is performed by a group of people with dementia,…
Thinking of Richard Taylor and the hideous onslaught on his body as he is facing chemotherapy, radiotherapy and then radical surgery for oesophageal cancer, one wonders how much the human body and spirit can withstand. He is not alone around the world, as the wonderful Lori La Bey has proven with her tribute radio show…
Richard Taylor sent out his newsletter today, and bravely disclosed : “He is “a person living with the symptoms and diagnosis of dementia. I am now also Richard, a person living with esophageal cancer. It was discovered last week, “staged” this week, and I am working with three physicians on a plan on how to best…
Blogging about dementia has been one hell of a ride! So far, it has provided my husband and I with incredible support, but also occasionally some distress. It’s been interesting thinking about the last few days through the night. I always look in the mirror once I have been able to put aside the hurt or feelings…
A delayed diagnosis of dementia can reduce choices and shared opportunities with loved ones for many people, and can have a number of significant and negative outcomes. Rate of the disease may progress more quickly as reduced ability to participate in healthy lifestyle, non pharmacological and positive psychosocial interventions The person with dementia may no longer have legal capacity to make decisions…
The Adelaide Fringe event I put on this year raised funds for dementia research and The Big Issue (SA) organisation, and I feel thrilled that I can now donate $3000 towards each. The other thing I wanted to do for this, was to set a small fire towards greater research into dementia and authentic brain…
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