Next year Alzheimer’s Disease International and Alzheimer’s Australia are holding a joint conference in Perth. The following is the latest Speakers Terms and Conditions for presenting at Alzheimer’s Disease International conferences, with their recommendations on appropriate language for dementia.
The whole document is here ADI2015-Speaker Terms and Conditions_2014, and I have copied the language section below. For this conference, ADI now also have an alternative Abstract system for prospective presenters such as people living with dementia or non professionals, in order to cater for issues such as the disabilities caused by dementia making it much easier for us to participate.
ADI ABSTRACT AND PRESENTER LANGUAGE GUIDELINES
The purpose of these language guidelines is to inform you of what ADI believe to be the latest guidelines in the use of appropriate language about people with dementia, and to inform you in your work. They are to be used when presenting at ADI conferences, and other conferences about Alzheimer’s disease and other dementias. It is important that you as presenters heed these guidelines in your abstract submissions, and if successful, in your oral or poster presentations.
The following highlights the preferred terms next to the terms we advise submitters not to use when referring to a person with dementia or their family/friend support person:
|Dementia/a form or type of dementia/symptoms of dementia – NOT – Dementing illness, Demented, Affliction, Senile dementia, Senility|
|Condition – NOT – Disease, Illness|
|Younger onset dementia – NOT – Early onset dementia when referring to someone under the age of 65|
|Person living with dementia, diagnosed with dementia – NOT – Sufferer, Suffering, Sufferers, Demented sufferers, Vacant dement, Victim, Demented person, Patient, Subject, Case|
|Family member/s or person supporting someone living with dementia, Wife/husband, child, friend – SUGGESTED – Care partner|
|Disabling, challenging, life changing, stressful – NOT – Hopeless, Unbearable, Impossible, Tragic, Devastating, Painful, Distressing, Fading away, Empty shell, Not all there, Disappearing, Stealing them away (they are always still there), The longest goodbye|
|Impact/effect of supporting someone with dementia – NOT – Carer burden, Burden of caring|
|BPSD, changed behaviour, challenging or difficult communication – NOT – aggressive, wanderer, poor feeder, wetter or incontinent, obstructive, non–communicator, attention-seekers, non-communicators, obstructive, etc|
I’m hoping this is a useful list for everyone, including the media.
You can send in an Abstract, or register for the next ADI conference to be held in Perth here.