I’ve been feeling really overwhelmed, and in fact, like giving up blogging, FB, twitter and all of my advocacy. As usual, if one shuts up long enough to listen, the universe supports, and today I received some very sage advice:
“… honestly sometimes I think that with people with dementia that unless you give them specific things to complete, it is very hard for them to remember and to know what to do to help. I often experience some of the same problems and have such problems with time management and then when I work on things, it takes me so long to do things that used to take very little time that sometimes it can make you feel like giving up if you put too high of a demand on yourself.
So, my suggestion to you and this is just my idea, but I would suggest you prioritize what you are doing so that the things that fall lower in your personal priority, if they don’t get done then that is better for you than to feel overly stressed.
Remember, stress is supposed to be one of our enemies so don’t stress!
The world isn’t going to end if any of us doesn’t get everything we wanted to get done, so give yourself a break more.
That’s my advice anyway for what it’s worth. You get more done than most anyone I know living with dementia and how you do it, I haven’t a clue so make sure you don’t gauge people by what you are able to get done. I would have my head swimming if I even tried to do all you do along with feeling pressure to get other things in my life done. So, sorry to ramble on, I wish I had the answers!”
Thank you to my wise and very supportive friend for this advice, who is also living with a diagnosis of dementia. I love honesty, and know one of my challenges has always been to think that others will be as committed as me or as willing to put in the same amount of effort or focus as me. Wrong! And VERY rightly so! A helpful, gently and very timely reminder for me.