Public campaign against BPSD part 1

Please read and if you wish, comment on this open letter, first published by Susan Macauley.

open letter to dementia researchers

Watch this space…

18 thoughts on “Public campaign against BPSD part 1”

  1. Hello Kate

    Thanks for getting this article out where more of us can read it – and begin to take action on it. I also followed a few links and found Dr Al Power’s “Living Well with Dementia: What it Means and What it Doesn’t Mean”. I feel a sense of urgency about finding genuine ways to connect with what people are going through – and how the answers are with ‘those who are considered to have the problem’. (I keep having conversations with people who supposedly don’t talk anymore.)

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  2. woohoooo-this is amazing Kate and Susan-go girls! You girls are so inspirational and continue to amaze me-very interesting and i look forward to reading many more-what a wonderful initative-i know it will make a huge difference to people-best wishes and thankyou!😊👍

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  3. Thanks for this Kate. Totally on point my friend. 😍😍
    It seems as always, we have exactly the same views, and mirror the same thoughts.
    I know you and Susan both probably have these articles of mine, but hope by sharing them further, they may add strength to the open letter.
    “Challenging the Behavioural Paradigm – The Right to Express Yourself”
    https://www.linkedin.com/pulse/challenging-behavioural-paradigm-right-express-yourself-bisiani
    and
    https://www.linkedin.com/pulse/medicated-motivated-questioning-abusive-practice-chemical-bisiani
    If you would like the hard copies just email me. 👍🏻👍🏻
    I also recently presented the same information on both these topics this May at the 2018 National Dementia Conference and it definitely challenged the masses. 🙏🏻
    It’s awesome to see we are all on the same page. ☺️☺️
    We continue the fight for what is right.
    Nicely done chicks. 🙌🏻
    Leah. Xx❣️❣️

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    • Thank you Leah… Susan wrote this one, I asked to join her. When I’m back, let’s talk urgently about a campaign in Oz. We need it URGENTLY, and your articles contribute significantly to it. Hugs xxx

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    • Susan has done a stellar job as always.
      We all 3 definitely are a force to be reckoned with.
      Yes let’s definitely talk when you return darling. I’m in without a doubt!!!
      It seems we are finally getting traction on this topic, so we need to strike now and make our voices so loud that we can’t be ignored.
      Looking forward to it. I relish the challenge and love a good argument as you know.
      Travel safe. Glad my documents are helping the fight. That’s what they were written for.
      I’ll always be your right hand man my friend. 🙏🏻💜💜

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