Hopefully this blog makes even a little bit of sense, although as I read and edit it, I’m a bit concerned. Anyway, my goal is for you to consider the first list, as if it were you.
When you’re having a bad day, are struggling to do something, or things are going wrong, or if you live with an obvious disability:
- Is being pitied helpful?
- Do you need people to take over for you?
- Do you need others to talk for you?
- Do you need people to assume it’s difficult, and publicly tell the world explicitly what’s going wrong for you?
- Do you need others to assume you are suffering?
- Would it be helpful for others to then tell the world you are suffering, as if their experience of watching you have a difficult time is also yours?
- Would these responses be disempowering and further disabling?
- Would you feel a tad pissed off with any of the reactions above?
- And would you like your family or partner to Blab all over social media about your experiences?
If you experience any of the responses above, and you also support someone diagnosed with dementia, then please consider how they might feel when all of these things are done to them.
I’ve listed below just a few normal human responses (to the list above), which if you have dementia would be labelled as the Behavioural and Psychological Symptoms of Dementia (BPSD):
- Angry or anxious
- Shutting down, refusing to communicate (stubborn, rude, non compliant)
- Wanting to get away (absconding, wandering)
If you had any or all of the same responses… well, if you are a PWoD (Person Without Dementia), then that’s absolutely ok.
Don’t worry, you won’t be chemically or physically restrained, or labelled as if they are symptoms of a disease.
It’s only people WITH dementia (PwD) who are not yet allowed to have normal human responses like this, isn’t it?
It really is time to #BanBPSD