The quote below is the type of thing I read too often, written by a care partner about the person with dementia that they are supporting (love?). It’s one of literally millions of public posts similar to this one, that inspired my blog published yesterday. Ouch is probably an understatement.
I’m sick of everything. Sick of him not being able to speak.hear or write intelligibly, sick of him not understanding what I write, sick of people telling me how well I am coping, sick of being told to get out more, sick of his lack of any sort of emotion, sick of him just staring at me when I try to communicate, sick of him ignoring me and others who, bless them, are trying to help, sick him using me as a taxi driver since he stopped driving,sick of everything.
My good friend’s husband died suddenly last week after a lovely golfing break & Im actually jealous.
This is just a sample of what’s out there. Forget the long goodbyes, as that sounds almost positive. Especially in contrast to reading graphic accounts of faecal and urinary incontinence, wet beds, ‘challenging behaviours’, too ‘lazy’ to get involved, or communicate, and so much more.
Oh my goodness… if we (people with dementia) published things like this about ‘carers’, we’d all be locked away! Long before we got to end stage!
If you’re not, you probably should be.