Dementia and self esteem

self-esteemUnfortunately, I had low self esteem right into my thirties, like a dark cloud hanging out in the background of my subconscious. I was quite shy as a child, and always wanting approval as we rarely received positive feedback, no matter how well we did at something. My self esteem developed after many years of reading and attending motivational conferences and seminars, lots of self evaluation and reflection, in fact, a lot of hard work!

It did not come easily to me, and with broken relationships and the death of someone I had loved, it was often easier to ignore my own worth, and blame myself. I have delved deep into my subconscious, and many of my book shelves definitely look like the inside of an Adelaide self help bookshop called COPE!

My self esteem was soaring, not egotistically, but in a healthy way, and then along came dementia. The shame, stigma, discrimination and ever-increasing disabilities tried desperately to erode my self esteem, somehow made me feel less worthwhile, less able. The label ‘disabled’ was really difficult to accept, even though in dementia circles, considering the symptoms of dementia as disabilities was not at all the norm, and is only now evolving.

In 2009 I wrote a report after attending a disability conference,  supported by the University of South Australia, and facing up to the symptoms as disAbilities was the most positive thing I could have done. And then, finding ways to overcome or accommodate them ensured my self esteem didn’t tumble back to ground zero. As I’ve been advocating for people with dementia to become involved in a new group, Alzheimer’s Australia Dementia Advisory Group, I’ve been fighting hard to get many of the carers people with dementia, as well as the people with dementia, to believe they have the ability to contribute.

As the website ‘I Can I Will’, inspired by Richard Taylor  implies, people with dementia can and must speak up for themselves. This will not only ensure we have a voice about our own care and futures, but will help to keep our sense of being valued, of contributing positively, and our self esteem intact. It is important people with dementia still have a purpose, a reason to fight against the symptoms of dementia, and against the stigma and discrimination. If we only evaluate our own worth, or judge ourselves by dementia, our self esteem has nowhere to go except downwards. Self-esteem is a disposition that a person has which represents their judgments of their own worthiness, and therefore it is important for others to treat us as valued citizens, and to respect and understand they should not define us by ‘dementia’, to help us believe in ourselves and our self esteem.

12 thoughts on “Dementia and self esteem

  1. Hi Kate,
    I love your website. It inspires me. Self Esteem is my life topic. I had a big accident when I was 3 years old. Now 43 years later, looking back at my life and wonder how I got this far? In this trip I went to special schools, because I was mentally damaged badly. It gave me a stigma and low selfesteem. The special schools gave me a trip with other youngsters who had paralised legs and a fight in the car changed my life fore ever. Five years ago mine dream came through and did the impossible, I went succesfully to a higher eduction and my goal is to coach people with low selfesteem.
    I found your website because I was looking for a picture to communicate what Selfesteem is about. I live in the Netherlands and I would like to use this picture. Is this your picture and do I have your approval to use it for website and flyer. Aldo I need to make some little changes.
    Looking forward for your reply.
    Best Regards,
    Gerard van Dijk
    Zeewolde, The Netherlands

    • Hello Gerard, great to meet someone else on a ‘life topic’, and self esteem is such an important one. The image you have asked to use was sourced from googleimages.com so I’m sure you can use it, in fact you have highlighted I forgot to reference my source, so thanks! All the best… I may be in the Netherlands in July so who knows, we could even connect?!

  2. What brilliant and eloquent writing… I really enjoyed reading this post it hooked me in from the very beginning. I admire you for being such a fighter and an inspiration to help so many others to share their voice 🙂 x

  3. You are still soaring up there Kate or you wouldn’t be doing what you are doing or inspiring others as you are! Never, ever doubt yourself, you are too good a soul to do that to yourself. Stay high on your efforts and have a fab weekend my friend….VK

  4. Kate – that is so beautifully written. You should submit it to some patient newsletters ….. it is so professional and precise.

    Congratulations 🙂

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