I repeat: “Please don’t call us sufferers”

During the recent ADI2014 conference, it was apparent the language being used by researchers and other presenters to refer to people with dementia is still very derogatory, stigmatising and discriminatory. Now really, do any of these people look like they are suffering, or like they are  victims?! It looks more to me like we are…

Changing the world

“Never doubt that a small group of thoughtful committed citizens can change the world – indeed it is the only thing that ever does” Margaret Meade The Alzheimer’s Disease International (ADI) conference in London in 2012 is where I met with this group of truly amazing people with dementia, all advocating in their own countries. It…

A metaphorical punch in the face…

This morning my husband and I discussed a few incidents or D-moments that have taken place the last few weeks, which have really knocked him out of his denial bubble. He has subsequently been a little down in the dumps, as he is forced to face what is ahead. Thankfully last night he went out with three mates for their monthly…

Finding a voice for PWD

I’m often challenged by the fact that conferences, seminars, forums or educational programs about dementia, often marketed to people with dementia (PWD), and as events which are inclusive of them, are organised exclusively by people without dementia, and for the most part, without people with dementia as plenary speakers. Many of you know I have regularly railed against…

Dementia and self esteem

Unfortunately, I had low self esteem right into my thirties, like a dark cloud hanging out in the background of my subconscious. I was quite shy as a child, and always wanting approval as we rarely received positive feedback, no matter how well we did at something. My self esteem developed after many years of reading and attending…

Dementia and the downhill slide

The last two weeks we have faced the deaths of two friends, both with younger onset dementia although my dear friend Michael had so many other serious illnesses, thankfully it was right down at the bottom of the ladder of his life. However, for the last few days we have been waiting on the phone call to…

Sunday humour…

I love this picture, and the name of the food stall… these boys are hardly fat!! We’re in Adelaide airport waiting for our flight to Kuala Lumpur where we have two whole days to enjoy the sights. Mostly though, I’m really looking forward to the food!! In fact I’ve been drooling ever since we booked…