Women: the CEO’s of the household

The following is a portion of my presentation at the GADAA event, Women and Dementia: A Global Challenge event last Thursday! When diagnosed with dementia, women experience stigma, discrimination, sexism (that exists everywhere, not just because of dementia) and if diagnosed younger, then we also experience the ageism attached to having what is perceived to be an ‘older…

Sex and dementia

The topic of sex and dementia is one I have been thinking about writing on for some time, and now seems the right time to post something about it. Many have written and talked about people with dementia and sexuality, including writing articles and books about it, but so far, I have not found very…

Loneliness

A sense of loneliness So deep It takes my breath away Reminding me of those departed Lingering inside my heart Lost to the stigma of dementia Tales of despair Whisperings of days gone by Deteriorating abilities Sadness sitting just inside my soul Yearning for my loss of self Footnote: Through this blog, and other social…

The World Dementia Council

The World Dementia Council meets this week, without anyone living with a diagnosis of dementia, or any family carers, invited to be a part of this event. Yesterday I received an open letter (via email) from Dr Shibley Rahman, personal friend, colleague and academic in dementia from the UK, regarding the ‘World Dementia Council‘. I…

Dementia friendly???

There has been a small groundswell of people speaking out about the discrimination, stigma and downright nastiness of others against the elderly, and in particular people with dementia. I posted a comment on this article; “Whatever happened to equal rights for people with disabilities or impairments, and to humanity, and compassion??? I am as shocked by…

In the shoes of a person with dementia

How would you feel being diagnosed with dementia? Last week I had the great pleasure to meet in person the wonderful Gill from Whose Shoes. It inspired me to pose a few simple questions to invite you to feel what it feels like in the shoes of a person with dementia. Would you like the idea that…

Dementia and self esteem

Unfortunately, I had low self esteem right into my thirties, like a dark cloud hanging out in the background of my subconscious. I was quite shy as a child, and always wanting approval as we rarely received positive feedback, no matter how well we did at something. My self esteem developed after many years of reading and attending…

Dementia as a disAbility

Treating symptoms in the early stages of dementia, as the gateway to supporting disabilities, not managing them in ways that restrict and hinder, and managing emotional changes with counselling and positive engagement, rather than treating the symptoms with drugs, have become paramount to my well being and perceived longevity. If the symptoms of dementia were…

Wishing Richard Taylor well for his surgery

As I type, Richard is probably under the influence of anaesthetic drugs and the robotic arm at the Methodist Hospital in Houston, Texas USA. He will spend 6-10 hours on the operating room table with a six armed robot surgery machine named Da Vinci. As most of you already know he just completed a month of chemotherapy,…

Living outside the stigmas and expectations of others

Recently Richard Taylor  wrote to the following message to a person with younger onset dementia living in Queensland who had connected with him via his website; “Thank you for taking the time to write. Have you met Kate Swaffer? She is a kindred spirit, who also lives in Australia, of ours who hears the same…