Living in exile…

exileWe’re heading for hot weather again in some parts of Australia, which reminds me of a comment made by a friend at the end of the very recent heat wave. We had planned to visit an elderly friend, but she rang at the end of the week to apologise she’d not been in touch as it was too hot.

The final comment she made was to repeat what one of her friends had said about not being able to go out (simply because of the heat); it was like ‘Living in exile’.

A little later, I started to think about this comment and eventually started feeling a little cranky. Not being able to go out because of the heat, how ridiculous! I realised this is my life all the time, due to the fact I can no longer drive due to the symptoms of dementia. It is like ‘Living in exile’, and initially felt like having my legs amputated. I have written about the impact of losing my licence here and also presented a paper about it in Taipei last year.

Luckily for me, I don’t often have PLOM disease, and almost always do see the glass half full. If this was not the case, my reactions to losing my driving license and being forced to live in exile might have been much more of a burden on my family. So living in exile it sometimes might feel, but really now, I only had my driver’s license revoked… Build a bridge and toughen up Princess!

9 thoughts on “Living in exile…

  1. Life is what we make of it my friend. We are into our third week of zero and below zero temps and the other day it really got me and I had a bad case of cabin fever. Then the snow came and I had to go out and shovel yet again and as I was shoveling I was struck with a powerful thought. If it wasn’t so cold the snow could have easily been heavy and exhausting to shovel rather than the lighter than air snow I was dealing with. We have a choice to find the good in the bad or else succumb to it….Much love…VK xxoo

  2. Firstly – most importantly – hope that you can cope well with the upcoming heat wave! It’s debilitating even for ‘healthy’ people.

    Your example is difficult to adjust to because someone else has ‘inflicted’ it on you … society, based on some 15 minute test.

    I have an example of something that is similar. (And maybe even worse because I believe you are still able to get out and move around independently?) Being housebound because of medical problems. Speaking from my own personal experience, I’m very housebound from serious fatigue, and also because of pain and a few other problems. In fact at home I’m lounge-bound for most of the day.

    But what happens with disease is people get used to one level of functioning and slowly over time they can do less and less and because they’ve had time to get used to the different levels of functioning they’ve also got time to adjust mentally/psychologically. It would be harder if you lost everything straight away. Know what I mean?

    Just a few ideas 🙂

    • I definitely agree with you … illness that isolates people, and also immobility caused by old ages, is living in exile too, and could feel worse than not being able to drive… take care my friend and sending hugs to you xox

  3. Hi Kate – thanks so much for such a brilliant writing on a very difficult topic – it will help me in the future…but could you tell me what PLOM disease is please? Thanks. Shelley

  4. My friend, you are far too tough on yourself. Not having a driving licence is like having ones wings clipped. But it’s just the wings. There are more ways of flying – not the same, but still flying.

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