5 thoughts on “The storms of change

  1. Hi Kate, I have recently been following your blog. I am a social work university student in England, currently doing my dissertation on how social work can help to facilitate the voice of those living with dementia. Your blog has been extremely useful in helping me talk about influential people living with dementia, and about giving a voice to those living with it. I was wondering if you had any thoughts on how those living with dementia are heard in society. Do you think those with dementia are listened to? acknowledged? ignored? I am interested to hear your opinion. Many thanks, and I hope you don’t mind me asking.

    • Hi Katy, thanks for following my blog, and it’s great to have you join the conversation.
      Wow, what an interesting topic you have asked me! I commence a PhD soon, and part of my research is going to be about the passive stigma people with dementia experience, especially from those providing advocacy or services for us… it is, in my opinion rife, and has a lot to do with why stigma is still such a lived experience for us all. I may prove myself wrong, but really do doubt it! Would you like me to email you to chat further? 🙂

      • Hello again Kate, I am so sorry it has taken me so long to get back to you! Yes, if you could email me that would be great. I would love to hear from a person living with dementia and how they feel. It is so easy to find sources where family, carers and professionals give their opinions, but the focus of my dissertation is giving those who actually live with it, a voice. Will really look forward to hearing from you. Katy

  2. Several thoughts come: It is so difficult for many to admit they are wrong. Change often is a storm. Was just thinking that I have gotten so comfortable in my environment that giving it up would be difficult. How often we hurt others, not on purpose, without thinking about it.

    • I agree with your sentiments dear Michael… and realise some of what I have written, would possibly hurt even you. I’d like you to know, at no time, when I rant about care partners who for example, speak out about their experience of supporting someone with dementia as being hurtful to people with dementia, do I mean you. I have ALWAYS found your writings to be honourable, and full of love and integrity, and never to speak of your beloved Gregory as a burden, not ever. It comes through loud and clear you had an equitable partnership and relationship, always, and he truly was your hero (as you were his) xoxox

The only thing missing in this global conversation is YOUR voice... Thank you.

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