What people with dementia want from residential care homes

Screen Shot 2016-07-01 at 10.22.49 AMI was recently published in the Australian Journal of Dementia Care (AJDC), and my article has been republished the Aged Care Report Card this week as well. You can read the full article, What people with dementia want from residential care homes, where I explain what people with dementia have said they want from residential care, based on my own experience living with younger onset dementia, my experience as a past care partner advocating for and supporting others with dementia in their homes and then in residential care, and from feedback gathered during focus groups and interviews with people with dementia and their significant others around Australia that took place last year.

The AJDC is a great publication, and I strongly recommend you consider subscribing to it, especially if you are a professional as you can at least claim it on your tax in Australia! They now have online subscription process available here…

I’d love to hear your stories from residential care, good or bad experiences so please also feel free to share them with me here.

The article was first published in the Australian Journal of Dementia Care (www.journalofdementiacare.com) Vol 5 No 3 June/July 2016. It was republished by Aged Care Report Card with the permission of the author and Hawker Publications Australia Pty.Ltd.

6 thoughts on “What people with dementia want from residential care homes

  1. Pingback: Dementia: enabling, inclusive and accessible – Living Beyond Dementia™

  2. Great article Kate, I’ve posted it on the people for person centred care FB page and LinkedIn group.

    Coincidentally, I’ve just done a survey of friends and dementia care partners asking the question of whether they “look forward to going into a nursing home.” Mostly the answer is an emphatic “No!” with the exception of care partners who have children who mostly say they would rather go to a nursing home than burden their children with having to care for them.

    I like your question: “What would you like to see in a long-term care facility?” which I think is valid for everyone, not just people who live with dementia.

    Here’s an article I recently posted on the same theme: http://myalzheimersstory.com/2016/06/28/being-elderly-and-living-with-dementia-is-not-a-crime/

    Keep up the excellent work.


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