Brain Health, 2 D-words and HOPE

Since my own diagnosis of a younger onset dementia 13 years ago, I continue to be disturbed by the lack of recognition of dementia as a disability and lack of proactive support to live with dementia. People newly diagnosed with dementia already have their hope taken away at the time of diagnosis, so to have…

International Womens Day 2021

Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…

New book: Wandering the wards

WANDERING the WARDS An Ethnography of Hospital Care and its Consequences for People Living with Dementia By Katie Featherstone and Andy Northcott This is an interesting and useful book, based on the wanderings of the authors and staff, NOT the patients with dementia in hospitals! This book is especially timely in light of the release…

More on the realities of advocacy

A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…

BPSD vs BPSC-19

I’ve written many time about BPSD or ‘challenging behaviours’ as well as what I have termed BPSC-19, but the comparison may not be obvious to everyone. Hence, for day 27 of Dementia Awareness Month in 2020, I decided to list the ‘symptons’ of each here. If we check out the two lists we could be…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Inclusion… or exclusion?

We are well over half way through Dementia Awareness Month, and I’m tired, but continuing with my daily blog series, in an effort to create new thinking, and discussion. Some of the topics I’ve chosen are difficult to write about, like this one,. They may even cause offence to others, including causing dissent amongst some…