Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…
The quest for a more positive public narrative about those of us diagnosed with dementia, and on attitudes about the way a person and their family might choose (and be able) to live with dementia continues. Currently, living too positively with dementia, being remotely functional, and even having fun with it too often gets those…
“FIVE YEARS ON: WHY DAI? WHERE HAVE WE BEEN” WHERE ARE WE GOING?” With a new diagnosis of dementia every 3 seconds, it is not surprising that DAI has continued to grow since its launch five years ago. John Sandblom and I are both presenting, and are two of the eight co-founders. We are co…
The short Vimeo I am posting below today was made by a friend and colleague in Scotland, which I found to be incredibly profound. For me, it spoke mostly about truth. But it also speaks about lies and deception, and arrogance and the lack of scrutiny. As I have become what others often tell me…
Hello. It has been about a week since I last posted a blog, and I decided to start the new year with one which was posted on the International Day of persons with Disabilities on December 3, 2018, on why employers should employ people with disabilities. So, I’m beginning the year here with a mataphorical…
Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…
In the last few weeks, there have been a few articles, blogs or tweets on the impact of others publicly doubting a persons diagnosis of dementia, which I am highlighting here for your weekend reading! One tweet by a professional last week claimed with certainty some people don’t have dementia. Whilst it didn’t name anyone,…
