Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Learning life’s lessons…

“Invisible wounds are the hardest to heal, and often their healing depends on the unconditional love of others.”  Inner healing is also made very difficult when a person dies, and it is also really challenging to heal one’s own wounds, even when the person is still alive, when their love and affection is conditional. 2019…

Person Centred Planning for Death

Image source: Kate Swaffer Recently, there has been an online discussion somewhere on Facebook (I can’t find it to refer to it) about what needs to go into what in Australia, we call “Advance Care Directives” (updated from Advanced since being indirectly corrected via twitter). I have had a legal will, and both a legal…

Understand with your heart

The last few months, I have noticed a lot of changes in my physical and cognitive health, and have watched on as so many others are struggling with worsening or new health issues, or facing difficult personal challenges. It is worrying, and on some days, it would be so easy to give up not only…

Lightening the tone…

This week for my #BanBPSD #WAM2018 blog series, the focus has been on disrupting the current care system in dementia. Some of the p posts have been a bit ‘heavy’, but, there has been much health debate about it on Twitter, LinkedIn, Facebook, and also here, which is healthy, and very encouraging. To lighten the…

Rethinking Dementia: Normal Human responses #2

Let’s STOP Pathologising Normal Human Responses For #WAM2018, and on day 3, I am continuing my series of blogs, highlighting why many other people also believe we need to BanBPSD. On June 9, 2018 Susan Macaulay wrote an open letter to members of the dementia community worldwide, highlighted below. She outlines what happened to her…

Bagdhad Cafe

In case you have a day where you are bored, stressed, have nothing planned, are not working, or just want to watch something unique and original, thanks to Dennis Frost for finding it, you can today! if you so choose, I do recommend you watch Baghdad Cafe, one of my all time favourite movies and…