Dementia through the disability lens

Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…

Optimism, Resilience and your Attitude

As a long time optimist with an already high level of personal and professional resilience, brought up in a dysfuncitonal family where alcohol and mental illness were rampant, and never talked about, I have had to work on my resilience to maintain my optimism. This quote from Lou Holtz resonates with me, “Your talent determines…

Brain Health, 2 D-words and HOPE

Since my own diagnosis of a younger onset dementia 13 years ago, I continue to be disturbed by the lack of recognition of dementia as a disability and lack of proactive support to live with dementia. People newly diagnosed with dementia already have their hope taken away at the time of diagnosis, so to have…

Dementia: a major cause of disability

In June 2019, Dementia Alliance International, held the first Side Event at the Conference of State Parties (CoSP) on the Convention on the Rights of Persons with Disabilities (CRPD) ever to be hosted specifically focused on dementia as a major cause disability, and our rights under the CRPD. This is important in the context of brain health.…

Dementia, Transcendental Meditation & Bredesen

More today on strategies to improve brain health, this blog was first published on my Living Beyond Dementia™ website… Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which…

SCOPE Australia Communication Access

Over the last decade or so, organisations, large charities, businesses, even the World Health Organisation, as well as many local councils and governments have been saying they support and promote inclusive communities for everyone. Some go as far as saying they provide training for them. In the dementia sector they are referred to as Dementia…

Dementia, disAbility and the CRPD

I’ve become increasingly frustrated that academics, service providers, advocacy organisations, dementia consultants and health care professionals refuse to include in their work, and therefore our services, that dementia is a major cause of disability and dependence globally (WHO). A few others are starting to feel my pain, and Daniela Greenwood today made a comment to…

Transcendental Meditation and Dementia

Published many years ago here, and then on my (no longer active) website, Living Beyond Dementia website: Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which…

International Womens Day 2021

Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…

New book: Wandering the wards

WANDERING the WARDS An Ethnography of Hospital Care and its Consequences for People Living with Dementia By Katie Featherstone and Andy Northcott This is an interesting and useful book, based on the wanderings of the authors and staff, NOT the patients with dementia in hospitals! This book is especially timely in light of the release…