Published many years ago here, and then on my (no longer active) website, Living Beyond Dementia website: Anyone who follows this site knows I have been a believer in Bredesen’s Protocol, although I do have some healthy scepticism as well! In saying that, I believe if we don’t view dementia as a chronic disease, which…
Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…
This week has me deeply disturbed, angry, sad and yesterday, even tearful about quite a few things, none of which are personal matters, even though some who read this will already know I do have a few serious personal issues to be worried about at the moment too! But, onto one of the reasons I…
WANDERING the WARDS An Ethnography of Hospital Care and its Consequences for People Living with Dementia By Katie Featherstone and Andy Northcott This is an interesting and useful book, based on the wanderings of the authors and staff, NOT the patients with dementia in hospitals! This book is especially timely in light of the release…
A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…
For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…
Hello there! It has been quite a while since I contributed to my own blog and website, and I feel like I’ve missed out on some great conversations. The one thing I love about feedback is that we get to hear about different views on topics, and even if we don’t agree with each other,…
The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…
You are invited to register for two important webinars being hosted by Sydney University, Associate Professor Lee-Fay Low and Professor Kate Laver on why rehabilitation for people with dementia matters, to launch their new book, Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Webinar 1 : Rights, communication, comorbidities. Webinar 2: Work, exercise, play About the…
Today is the final day of Dementia Awareness Month 2020, and it has been a marathon of sorts posting daily blogs, although it has been helpful having hundreds in my draft folder. It now takes me a long time to read, think things through, and even longer after than to write coherently. So, as I…
You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…
There are more than 50 million people living with dementia and a new diagnosis somewhere in the world every 3.2 seconds (WHO). I am one of them. Since my own diagnosis 12 years ago, I went from the depths of despair and hopelessness after being diagnosed, primarily caused by the Prescribed Disengagement®, to becoming a…
On July 1, 2012, I published a blog titled Dr Martin Luther King Jr asked ‘Is it right?” which I have added below, with a few edits or comments made in pink. It is interesting to me to read it again, and for a change, I still agree with most things I wrote back then.…
Once again, I have committed to post a daily blog in September, my feeble attempt at a contribution to Dementia Awareness Month, even though I am under no illusions of the value of doing so. Todays is about not giving up. Those of you who have read my blogs this month will know I have…
On Day 21 of Dementia Awareness Month 2020, which is also referred to as World Alzheimer’s Day, I wanted to change the pace here, with something positive. There is a real flurry of activity going on all around the world today, with events, webinars and conferences, many campagins in progress, and reports or survey findings…
