More on the realities of advocacy

A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…

Spaced Repetition

For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…

Webinars – Dementia: Rehabilitation Matters!

You are invited to register for two important webinars being hosted by Sydney University, Associate Professor Lee-Fay Low and Professor Kate Laver on why rehabilitation for people with dementia matters, to launch their new book, Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Webinar 1 : Rights, communication, comorbidities. Webinar 2: Work, exercise, play About the…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia Podcast

Recently I was interviewed by Bec Hogan, who is the Deputy Chair of 3C Management and is creating a social change project with the ‘Dementia Heroes Month’ Initiative. Bec is an Aged Care Consultant in Consumer Engagement Strategy & Creative Digital Content, and this series of podcasts runs throughout September, highlighting people she refers to…