Following on from all the wonderfully honest #DAI #Hello stories shared during World Alzheimer’s Month or Dementia Awareness Month, which is a term I prefer, as I’ve been advised many times by my neurologist I don’t have Alzheimer’s, I decided a blog updating the changes in my cognitive disabilities was in order.
Sometimes the raw truth is important, as dementia is a moving feast, and really is one very tough gig, regardless of whether we find ways to live positively with it or not!
First of all, my husband Peter has been more worried lately, as there seem to be more changes in many areas than there have been for a while; he sees them before me now. He had acquired the nickname of BUB from me, but since our conference trip to Chicago, he’s now more often know as The Big Tuna! That in itself is another blog!
So, even charades is not working for all the ‘thing-a-me-jigs’ that I’m constantly referring to. Darn!
My emotions are so much more difficult to manage. I’m crying more at things that are not worth crying over. I’m laughing at things that are probably not funny. My ability to ‘negotiate’ the 3 R’s is definitely much more difficult. The back to front me is more pronounced, an ever present uninvited guest. I’m also crying over things worth crying about… These are all normal human responses, even if some have developed dyslexia.
At least 3 monthly, I see my general doctors regularly, and know they always check in with the depression scale! To date, I am not depressed, although last year did need a few sessions with a psychologist to get through being defamed publicly.
And in spite of all the stories people with dementia have shared in September about their own diagnoses, the dementia-doubters continue to abound. In fact, these stories appear to have increased the dementia-doubters.
They too may get dementia one day. Perhaps it is only then they will understand…