Welcome to my X, Y or Z Village

Over the last few years, the concept of Dementia Villages, Memory Cafes, Dementia specific shopping lanes, etc. has been growing, and worse, the villages are currently being lauded as ‘best practice’, in spite of there being NO evidence for them. Just like the Dementia Friendly Community or Dementia Friends initiatives, they were developed by people…

Dementia Care and the Stoneage

In an article titled, Faking Medical Reality, (as opposed to faking dementia) by John Rappoport on a website called The PPJ Gazette, John covers the issues of “when mainstream advocates attack so-called alternative or natural health, they tend to mention that their own sacred profession is based on real science, on studies, on clinical trials.”  One…

Doubting a diagnosis of dementia

In the last few weeks, there have been a few articles, blogs or tweets on the impact of others publicly doubting a persons diagnosis of dementia, which I am highlighting here for your weekend reading! One tweet by a professional last week claimed with certainty some people don’t have dementia. Whilst it didn’t name anyone,…

100 Women Of Influence: Global Leader 2018

Congratulations to the Australian Financial Review 100 Women of Influence (100WOI) in 2018, and to the category winners and overall winner. It is an honour to be listed amongst a group of such remarkable women. The awards are in their sixth year and were this year expanded to include an Alumni Projects program, an initiative designed…

I didn’t invite Mr Dementia

Following on from all the wonderfully honest #DAI #Hello stories shared during World Alzheimer’s Month or Dementia Awareness Month, which is a term I prefer, as I’ve been advised many times by my neurologist I don’t have Alzheimer’s, I decided a blog updating the changes in my cognitive disabilities was in order. Sometimes the raw…

Lack of Evidence Based Research: BanBPSD

An an article published on October 2, 2018, Behavioural and psychological symptoms of dementia: GPs’ perspective on management highlighted to me on Twitter via Dubhgas Taylor, I want to highlight one of the problems we are facing. It reports on a ‘mixed-methods systematic review by Jennings and colleagues aimed to develop a better understanding of general practitioners’…

Rethinking Dementia: Normal Human Responses #10

I really love this quote, and felt it quite relevant to this blog series about the need to #BanBPSD. Fronteirs in Neurology state: “Behavioral and psychological symptoms of dementia (BPSD), also known as neuropsychiatric symptoms, represent a heterogeneous group of non-cognitive symptoms and behaviors occurring in subjects with dementia.” Thankfully, at least in my opinion, there…