“Dementia care is caring for people
Who often do not know they need care,
And don’t want to be in care;
No wonder they may become angry and upset.”
Author: Kate Swaffer © 2012
#BanBPSD
Also published in: Love Life Loss, A roller-coaster of poetry (2012) Graphic Print Group, Richmond, SA and “What the hell happened to my brain?: Living Beyond Dementia” (2016) Jessica Kingsley Publishers, London, p 239.
We know that it is difficult for people with dementia to cope with lots of people, noise, activity, being rushed etc and yet the model of care we offer to those in need of care away from home is full of people, noise, busy-ness and being time limited for personal care routines, eating etc. Therefore translation of knowledge and education on this does not make it into practice. We are committing an unpardonable cruely when we place people in the exact situation we already know they will not cope well with. Better funded models of at home care plus small house-hold residential care models are crucial.
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Well, then it seems many must be a bit crazy not to accept that reacting to all of those things is normal, as they make it difficult for us to cope, communicate or understand. Absolutely nothing to do with dementia OR BPSD, which of course, is a false constuct.
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Exactly Kate. All of us with or without dementia find constant busy-ness, noise and being rushed by others a problem so is it a wonder why a person who has less coping capability rejects this?
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xoxox
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