There are many surprises after a diagnosis of dementia, and I was chatting about some of them Monday night with friends from the UK. One of the most common is the ‘friends’ who disappear after they find our we have dementia. A few weeks ago I was interviewed on the telephone by one of the producers of the…
I’m in Perth intending to attend the ADI 2015 conference in Perth, and have been able to meet a few more of my ‘imaginary’ friends! Yes, people I have met on Facebook or twitter, or through my blog, who are real people. Not axe murders, or imaginary. People like Shibley, and Chris, Jayne, and their daughter Kate,…
Today a number of people with dementia are either packing to travel to Perth for the 30th Alzheimer’s Disease International conference, or we are packed and almost on our way. To suggest people with dementia cannot live meaningful lives is a big mistake; the challenge for us is that upon diagnosis, we are usually written off! This…
A philosophy of living and not dying upon diagnosis of dementia… shared on Facebook by Max McCormick, also living with dementia.
Another one I love from Brain Pickings… and on one of my all time favourite poets! Thanks Maria… Enormous Smallness: The Sweet Illustrated Story of E. E. Cummings and His Creative Bravery by Maria Popova “It takes courage to grow up and become who you really are.”
There is emerging evidence for non pharmacological interventions for dementia, and evidence for life style changes as a way of preventing a diagnosis of dementia. It is, for me and many others living better with dementia, in spite of the sector telling us to go home and give up, very exciting times! Who knows how many…
Please join Dr Shibley Rahman and I at our Pre release book launch in London. If numbers become overwhelmingly high, we may need to change the venue, but, we won’t be changing the date! Below is the current format for the afternoon, written by Shibley for the Eventbrite booking site, and which may be subject to change: Event Details Kate…
How to Love: Legendary Zen Buddhist Teacher Thich Nhat Hanh on Mastering the Art of “Interbeing” Brain Pickings excels once again! I love this blog by Maria Popova, which you can read in full by following the link in the title. I have added a couple of quotes, and some thoughts of my own on…
The last few days have been racked with a sadness after the loss of a friend with younger onset dementia; for many of us there has been a revisiting of our own mortality, and the issues many people with dementia and our loved ones discuss, especially in the early days following a diagnosis. The fear engendered by the…
There are not enough words to express the sadness I and many others feel at the very recent loss of a dear friend Dena, who had been living with younger onset dementia, and who was one of the co-founders and on the first Board of Dementia Alliance International. We will all miss her beautiful smile and enlightened…
Reblogged from GenY Girl Here are her 4 Signs that You’re Not Leadership Material… Do follow the link in the title to the full article, and her wonderful insightful blog. It was one of those blog where I had a number of laugh out load moments!! Follow her blog, she is refreshingly insightful, full of…
According to Wikipedia, fear is a distressing negative sensation induced by a perceived threat. It is a basic survival mechanism occurring in response to a specific stimulus, such as pain or the threat of danger. In short, fear is the ability to recognise danger leading to an urge to confront it or flee from it (also…
Jack Nicholson famously once said in a movie, “You can’t handle the truth”. For many, this is the reality, and being honest and direct is my biggest ‘weakness’ or ‘fault’. I’d have to say, I don’t actually care any more as I have never intended to be rude with my honesty, but many find it…
Some time ago I attended one of the consumer forums where prior to the event it was not made clear the groups would be split into two; that is the people with dementia (PWD), and their carers/supporters of the people with dementia were separated. About 10 minutes before the end of the session, the reason why became crystal clear. One of the family members…
No other words are needed today… Amira Willighagen – O Mio Babbino Caro – HD – André Rieu (Love in Venice) Maastricht – 2014
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