A reason to walk

I’m sharing a DPSNews.com.au article from yesterday highlighting research about the value of walking as an antidote to falls. This of course, is yet another reason NOT to call it wandering, nor ‘manage’ walking as a challenging behaviour. “Aged care workers are being told to encourage residents to go for a walk instead of resting after eating to potentially…

The challenge of having your own opinion

Sometimes we are wrong Sometimes we don’t have all the facts Sometimes we see things differently to others Sometimes our personal life experiences can colour our judgement Sometimes we say things meant in a general way and others take it personally Sometimes we are right But the reality is It is only one persons opinion Right for them Sometimes set…

Yep, there really is big money in dementia

I’ve been listening to an author talk about a book she has recently published on her mother’s dementia based mainly on many recorded conversations they had about her experience of living with dementia, and she said at one point that she is “Sitting on a gold mine”. I am sure the book is terrific, and listening to the reviews…

Blog by DigitalHealth.gov.uk

                    If you are not on twitter, and have not seen this blog introducing me on digitalhealth.gov.au, you might be interested… I feel very honoured to have been representing Dementia Alliance International last week, and to have been referred to in this digitalhealth.gov.au blog, and extremely thrilled that issues such…

Here it is… MY expert opinion.

It seems the ‘experts’, namely those people who work in a field, but may not have any personal experience in that field, are always considered and called the experts, and the patients or consumers who are living with the experience or disease are often treated like morons or idiots, as if they have no expert insight…

Patients as experts

‘I’m an expert in diabetes but living with it isn’t always easy’ In NursingTimes.net by Anne Cooper, 4 April 2011. Patients are most definitely the experts in their condition or disease… this article you can read in full via this link, is from 2011, but has some great messages, least of all, this one: Finally, I…

Feeling hopeful

Many days I am worried And am often very cynical Of ever seeing change It is lonely and exhausting And I feel like nothing will change In my life time And then something unexpected happens That re-inspires me Again motivates me to keep going The time is now it seems As after The two days in Geneva At the…

Reblog from Dementia Alliance International

As I was representing Dementia Alliance International as co-chair at the first WHO Ministerial Conference on dementia this week, I feel it fair to reblog theirs today. As I have jet lag, it is also very helpful being able to be a bit lazier than usual! Before I departed for the event, I was feeling…

WHO webcast

It has been a very busy couple of days in Geneva, and I am thrilled to have put Dementia Alliance International onto the global stage, but more importantly, I feel as if we have three very important issues now on the global stage. You can read a précis of the two days written by Dr…

Arrived in Geneva

A quick trip top Geneva Proud to be representing Dementia Alliance International And all those people Around the world Diagnosed with dementia At the first World Health Organisation Ministerial Conference on dementia

Young people in Aged Care

This is an important topic for people with younger onset dementia, and worth reading. We will all need to work together to achieve a more age appropriate level of residential care, if it is every to happen across Australia and the world. It is, totally unacceptable that anyone under the age of 65, needs to…

People with dementia are getting into the driving seat

Dementia Alliance International (DAI) was set up by people with dementia to ensure we have an authentic voice, and so that we are not taken over by either organisations or family carers. It is important we have our own voice, just as people with disabilities, the gay community, and Aboriginal and Torres Strait Islanders fought for…

WHO Ministerial Conference

Dementia is indeed a public health priority, and I am proud to have been invited to attend the first WHO Ministerial Conference in Geneva next week on 16 and 17 March 2015. It is an honour to have been invited to present in a key note session on the morning of Day 2 on the issues important…