Proof of disabilities and discrimination

In a recent article I read on MamaMia about a young woman having to prove her disabilities, I was struck by the similarity to my experience, and that of many others, of having to prove we have dementia. “In just over the past month, Rhiannon has received two parking fines. The first of which she…

Spaced Repetition

For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia Podcast

Recently I was interviewed by Bec Hogan, who is the Deputy Chair of 3C Management and is creating a social change project with the ‘Dementia Heroes Month’ Initiative. Bec is an Aged Care Consultant in Consumer Engagement Strategy & Creative Digital Content, and this series of podcasts runs throughout September, highlighting people she refers to…

Rethinking Dementia, 2020

Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…

Australia will need to say ‘Sorry’ (again!)

As the time to provide a submission to the Royal Commission into Aged Care Quality and Safety draws to a close, I remain deeply concerned nothing will change, in spite of the more than 8000 submissions, millions of dollars spent on the Royal Commission, and any likely outcomes or ‘recommendatons’. Historically, the Australian government chooses to…

Ending confinement and segregation

Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. This article was published on 25 Jun 2020, in the Australian Journal of Human Rights, by Linda Steele , Kate Swaffer , Ray Carr, Lyn Phillipson & Richard Fleming. Abstract: Human rights are increasingly being considered in Australian law reform…

Human Rights and the Confinement of People Living with Dementia in Care Homes

Journal article by Linda Steele, Ray Carr, Kate Swaffer, Lyn Phillipson, and Richard Fleming, published 18 June 2020 in Health and Human Rights Abstract: This paper responds to growing concerns in human rights practice and scholarship about the confinement of people living with dementia in care homes. Moving beyond the existing focus in human rights…

The Behavioural and Psychological Symptoms of COVID-19 (BPSC-19)

Firstly, as we all face the current healthcare crisis, I acknowledge the challenging nature of these times and hope you are all safe and well. I suggest we phone our family and friends, and if that’s difficult, then consider writing a letter or sending a card. I love receiving letters and cards… I’m staying off…