Today I am looking forward to hearing a friend Ian Gladstone present Living and coping with Younger Onset Dementia as the keynote opening speaker at this event. Other presentations today include topics about putting the person first and well being, the complexities of supporting people with dementia and their family support person, an overview of a program supporting family support…
Yesterday I ran a pre conference workshop called Diagnosed with dementia: What next? as part of the National Dementia Congress in Melbourne, where I am presenting YOD: Reclaiming my life today. The workshop yesterday was with a small group of people working in the dementia sector, nurses, psychologists, social workers and so on, all keen to provide…
The dementia train A lottery ticket Lost inside an MRI machine Results that reach into your soul A pass for the dementia train Slowly taking off Speeding around corners It stops at the station But no way to get off And no one can get on No fat controller here Controlling the ride of my…
If you haven’t registered for the Alzheimer’s Disease International conference hosted by Alzheimer’s Australia Western Australia in April this year, it is not too late to do so. Early bird registrations have closed, but there is still time to register, and I am sure it will be worth your time and money to get yourself to…
If that is true Then people with dementia Are seriously stuffed! We have to live beyond The notion that this is true Or what would be the point Of living?
Happy wedding anniversary To the love of my life My best friend My Back Up Brain The reason I work so hard To stay afloat by paddling You are my rock And the army beside me Watching and protecting Yet allowing me to shine in my own light We are aware of each others shadows…
For six months now, I have been visiting and working in the Kiama area as part of the contracted consultancy role I have until this week with Alzheimer’s Australia, on the dementia friendly community Pilot Project with the local Kiama council, Alzheimer’s Australia and the University of Wollongong. The main challenge has been to involve and…
Today I am publishing a guest blog, written by a woman I am honoured to know, and whom I often feel in awe of. Judy has given me permission to share her story of living alone with dementia of the Alzheimer’s type. My blog title uses the word dementia, as her story applies to anyone living…
Let us learn to show our friendship for a man when he is alive and not after he is dead.” F. Scott Fitzgerald, The Great Gatsby We have to attend another funeral on Monday, and as always, it makes me sad, and even more philosophical about life. It always takes me back to the title…
An online friend (thankx i0) sent me this yesterday, and I’m sure you will enjoy it; Glenn Campbell’s song on living with Alzheimer’s Disease.
A person’s voice has greater chance of being heard when connected to the voice of others in similar circumstances, and very often, the closer the similarity the stronger the voice. For people with dementia and the family members who support them or other support people such as neighbours or friends, this has given rise to organisations…
Be grateful for every single thing, especially waking up!
I often ponder on the various activities and forms of ‘behaviour management’ or recreation offered to people with dementia in the community, and then in residential care homes. Why not go skydiving, dancing or fishing instead of playing Bingo… I’d be happy to spend it on that! I suspect it is likely the reason activities such…
Below is a Foreword for my book What the hell happened to my brain, which after reading the draft manuscript, Richard Taylor, PhD was generous to write. Thank you once again Richard; as I say in the book, you saved my life, almost literally and I love you like a brother. Richard wrote: “Most folks I have…
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