Becoming a serious blogger and writer!!!

“1,000 Posts! Congratulations on writing 1,000 total posts on Creating life with words: Inspiration, love and truth.” Last week, as per my husband’s expertise and infinite knowledge of blogging and bloggers, I became a serious blogger as I reached 1000 blogs!!! I could hardly believe it and I didn’t realise it until afterwards, and with…

10 Dignity in Care Principles

Recently I blogged about 17 things not to say or do to people with dementia, and have revised and reconsidered this list, to be published again soon. However I thought today I’d publish the list of 10 Dignity in Dementia Care Principles in use in SA Health. Dignity in Care was first launched in Australia in…

Soundbytes after diagnosis, by Mary Beth Wighton

This is the trumpet call of a friend and fellow member of Dementia Alliance International, Mary_Beth Wighton, which is almost like a digital poem, the second reason for posting today… enjoy, and if you have dementia and are not already, please think about becoming an advocate.  

Exploring dementia from the inside

In an interview for theguardian.com Fiona McFarlane said: ‘I wanted to explore dementia from the inside’. This is the article, as published recently under Australian CUlture Blog in the Guardian. “Shortlisted for a Miles Franklin award and writer in residence at Sydney Writers’ festival, the author says she is living the literary dream. At 36,…

The importance of being earnest…

On Friday I posted an honest Easter reflection, in part about losing my Christian faith. I have already been judged by some people I know, a couple to the point of saying they admire the work I do, but have now lost respect for me because I don’t believe in ‘their God’, and I quote,…

Easter reflection

Firstly, best wishes to everyone for Easter. It is a strange phenomenon that Christians, celebrate the story of a truly horrific torture of Jesus, and then His resurrection. In reality, I’ve lost my way, and have no idea if I believe in God anymore. Even non Christians get involved in the celebrations, via the commercialisation…

Big life, small suitcase

Kate Legge wrote a piece in The Australian, March 10-11 called ‘How do you shrink a big life into a small suitcase?‘ It was around the same time I had an article published in the Australian Journal of Dementia Care called ‘Human rights in residential aged care: a consumer’s perspective‘. The two articles look at…

Glenn Campbell lives well with dementia

Glenn Campbell has not allowed Alzheimer’s Disease to stop him from living his pre-diagnosis life. His wife Kim and family have supported and enabled him to continue singing and recording, and Glenn is living well with dementia. His wife Kim said that his doctors are convinced his continuing to be physically active and remaining meaningfully…

Dementia, chess and life…

Last year I joined Quora a really interesting site with conversations about many things, including life in general. I really liked the analogy made between playing Chess and Life by Joe Blitzstein Professor in the Harvard Statistics Department. He has been playing chess for 25 years (his US Chess Federation Rating is about 2100, about midway through the…

The next Understanding Dementia MOOC

The University of Tasmania’s second Massive Open Online Course (MOOC), Understanding Dementia, is a 9-week online course that builds upon the latest in international research on dementia. It’s free and anyone can register. Many readers of this blog undertook the course, and found it incredibly valuable. Not just people working in the field, but consumers with…

New national online resource to promote advance care planning

Media release Advance care planning (ACP) is the process of a person thinking about and communicating to others their values and wishes about possible future care at a time when they still have capacity. ACP is relevant for everyone in the community, but especially for people with chronic health conditions or at risk of losing…

Changing the world

“Never doubt that a small group of thoughtful committed citizens can change the world – indeed it is the only thing that ever does” Margaret Meade The Alzheimer’s Disease International (ADI) conference in London in 2012 is where I met with this group of truly amazing people with dementia, all advocating in their own countries. It…

Dementia patients don’t feel pain…

I’m in pain today and not functioning or paddling as well as usual so am posting this link to an article about friends of ours in Scotland. It is a very interesting read, and it still horrifies me to think pain has been ignored for so long in the care of people with dementia. How dementia…

Dementia = Loneliness

I am currently wrestling with a deep sense of loneliness. In my search for wisdom, I have just re-read a Wakley Prize Essay, Dr Ishani Kar-Purkayastha’s moving essay  An epidemic of loneliness and it was a timely reminder of the problems most recalcitrant to our research based and outcome-driven health care providers. Loneliness involves both social and emotional components…

Who’s suffering?

Diagnosed with dementia So much ‘suffering’ Sometimes my darling husband sits Holding his head in his hands Sad and tearful Watching the changes in his wife Caused by the symptoms of dementia And as I’m becoming less aware Increasingly less insightful Less frustrated Perhaps not ‘suffering’ at all My beloved husband Sits on the sidelines Watching my abilities slowly…