Fear Diagnosed with dementia Too often brings us intense fear Worry for our future Our losses Then Loss of reason Inability to think clearly Leaving us immobile Or raging In fight or Flight Or somewhere in between Nightmares and worrying Tempting us to give in To give up Don’t let fear cripple you Find a way, any way…
Since I have signed a contract for a book, I have had a minor dose of what I can only think must be writer’s block! I will definitely get it finished, and I have had a lot of very valid excuses not to complete it; for example, some other health issues, some deaths in our…
The books and resources for children are almost exclusively based around a grand parent having dementia, rather than a mother or father with YOD, and therefore it is time we talked about it. If anyone can refer me to a book for children of any age who have a parent with dementia, please do let…
Fires causing fear On Robyn and Chris’s farm Slowing down today
In case you don’t realise Dementia is an awful disease, and can’t understand why people in the early stages of dementia and their loves ones fear what is ahead, watch this video. It is worthy of a being my second blog today. It also shows the absolute depth of human love and committment by those people who love and…
As the symptoms of dementia are changing again, once more I search for new meaning in my life. New ways to find joy in my heart and new ways to see what is happening as a gift. Right now, I feel more fearful than joyous, and I’m having trouble remembering there have been many gifts…
This is the title I have given a book I’ve started writing for young children who have a parent with dementia. It sounds a little confronting, especially when I read it!! Why have I chosen this title? I suppose because I often wonder what it will mean to my sons when I forget them? These…
There are many negative things that happen after a diagnosis of dementia, and many that are ongoing challenges and changes, but for me the most difficult ongoing ones to live with are the isolation and loneliness. So many friends slip away after finding out you have dementia, not because they are bad people, but because…
Fear is a constant companion of most people living with a diagnosis of dementia. I’ve been thinking a lot lately about fear and dementia, and its impact when a person is diagnosed with dementia, or living with the symptoms of dementia. In the article Fear drives shadowing of Alzheimer’s caregivers written by Angela Lunde, it…
An online friend has given me some topics to write about, and today I thought I’d try a NaNoWriMo style writing of this one; “How do you feel about what the future holds for you – the future in 1 year, in 2 years and in 5 years? How does it make you feel? What…
A delayed diagnosis of dementia can reduce choices and shared opportunities with loved ones for many people, and can have a number of significant and negative outcomes. Rate of the disease may progress more quickly as reduced ability to participate in healthy lifestyle, non pharmacological and positive psychosocial interventions The person with dementia may no longer have legal capacity to make decisions…
According to Wikipedia, “fear is a distressing negative sensation induced by a perceived threat. It is a basic survival mechanism occurring in response to a specific stimulus, such as pain or the threat of danger. In short, fear is the ability to recognise danger leading to an urge to confront it or flee from it…
I have just uploaded my Fight Dementia rally speech onto YouTube http://www.youtube.com/watch?v=tgPVzT33UZQ Watching it forces me to jump out of my bubble of denial for a few moments, to remember it is me and my family this is happening to. I stay busy and focused on things other than dementia, and there are many moments in my days…
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