This may not be such a positive blog today! I have a private blog called ‘What the hell is happening to my brain?’, which many of you know is also the first part of the title of my book soon to be released, and I may have even posted at least one blog with that title before today.…
My blog today consists of some quotes from a blog I read, about the rights of people with disAbilities, the World Health Organisation determination on Discrimination, and my thoughts on all of this in relation to people living with dementia. People with dementia are currently advocating for inclusion and recognition under the United Nations Convention of the Rights…
After my blog yesterday, talking about safety vs autonomy, and my feelings about the traditional styles of residential care, I felt it important to also say, there are many in the sector wanting to improve things for people with dementia and their families. There are, as highlighted in some comments, many family care partners who…
I’ve been asked to write from a consumer’s perspective about whether I think the views of people with dementia could influence the design of residential aged care, and if there is a difference between the view of people with dementia and their families about what a care home should be like. It has been a difficult task, and is for…
ADI have a charter “I can live well with dementia’ – but still, no-one is telling us how to achieve it, or even that it is possible. For this International Charter to have any traction, people with dementia believe everyone, include their work. I’m also unsure this phrase is helpful, as living beyond dementia seems…
If you search in googleimages.com for an image to match the term ‘Day Care’ you mostly only find images for children day care services and centres, as per this image I have added today! I wrote the following for a friend and colleague, to read out at a conference who is attending soon with an audience…
What can i say… well not that much today, but, I am delighted to report I have been in a teleconference for over an hour discussing a research project around the theory of Prescribed Disengagement™. Woo Bloody Hoo! I really do have a lot more to day on this, but this slide for now says…
As we are getting near the end of this years World Alzheimer’s Month, I have been reflecting on what difference it has made to the lives of people living with dementia. Perhaps though, parts of these campaigns are doing more harm than good? Firstly, for much of the time and in most countries, this month #WAM2015…
A special friend Dr Peter Gordon, whom we had the absolute pleasure to meet with his wife and daughter (his son as away) in Scotland earlier in the year, writes from the heart and soul of his own humanity. I very much appreciate his intellect, his humour, his depth of character, his willingness to stand up for…
It is, obviously, still World Alzheimer’s Month 2015, so for Day 24 #DAM2015, and also making my life a little easier this week, I have found another article I wanted to re-blog, written and published on World Alzheimer’s Day this week by a colleague who I have not yet had the pleasure to meet in the UK, Damien…
For Day 22 of Dementia Awareness Month 2015 #DAM2015, I am re-blogging a post written on Belledelettres’s Blog by a friend in Scotland, who I had been online friends with and had the pleasure to meet in person in Edinburgh whilst over there this year. It is an important piece… Professor Steven Sabat is one of…
It is World Alzheimer’s Day, 21 September 2015, and all around the world there are events and meetings to celebrate the day, as a way of recognising the work of the organisations who advocate for us, and also where there are many conversations about the issues we face such as isolation and stigma. I still believe, whilst so many…
It is Day 14, and almost the middle of Dementia Awareness Month 2015, and I decided the topic of Dementia and common sense was a worthwhile one to write about, as I believe generally speaking common sense is missing in our care. I often think about common sense, and wonder it has gone these days, not just…
For Day 6 of Dementia Awareness Month 2015, I thought I’d move on a little from the theme of women and dementia, to a broader look at dementia, and the impact on our families. After all, I’d hate to be called sexist! The impact of dementia goes way beyond the person diagnosed, and for women…
Continuing on with my self-imposed theme for week one of Dementia Awareness month 2015, women and dementia, I thought it was important to write about the women who are in caring roles for people with dementia. The research clearly shows the care partners of someone living with dementia are mostly women, and even though women also are diagnosed at a much higher rate than…
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