International Womens Day 2021

Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…

More on the realities of advocacy

A fellow activist and dear friend of mine from from Germany attempted to comment on one of my recent blogs about the lack of services or tangible change for people with dementia and their care partners and/or families. Unfortunately she had trouble getting the comments posted, so sent them privately, and with her permission I’ve…

Spaced Repetition

For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…

Webinars – Dementia: Rehabilitation Matters!

You are invited to register for two important webinars being hosted by Sydney University, Associate Professor Lee-Fay Low and Professor Kate Laver on why rehabilitation for people with dementia matters, to launch their new book, Dementia Rehabilitation: Evidence-Based Interventions and Clinical Recommendations. Webinar 1 : Rights, communication, comorbidities. Webinar 2: Work, exercise, play About the…

Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia and survival

Dementia and me What the hell happened to my braindiagnosed with dementia when I was much too youngmy children still at schoola deadly terminal disease effectingmemory, thinking, perception, judgment, language and speech But worse than that, effecting mylife, family, friendships, my sense of self, my identityand a bucket load of guilttruckloads of stigma discrimination and…

Rehabilitation and Dementia: evidence and aspirations, by Lee-Fay Low

It is Day 3 of Dementia Awareness Month here, #DAM2020 and my blog is a recording of a presentation given by Assoc/Professor Lee-Fay Low on 15 August 2019. Lee-Fay is a friend and colleague helping to reframe dementia. I only saw the recording recently, and it’s given me much to think about, and to do!…

Rethinking Dementia, 2020

Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…