Activist and Activism: what do they mean?

In the last year or so, many people with and without dementia have started to document the history of what they perceive as dementia advocacy and/or activism. It almost feels like it is being done, as if to justify that the last more than two decades of advocacy have been worth it, and so I…

Dementia and survival

Dementia and me What the hell happened to my braindiagnosed with dementia when I was much too youngmy children still at schoola deadly terminal disease effectingmemory, thinking, perception, judgment, language and speech But worse than that, effecting mylife, family, friendships, my sense of self, my identityand a bucket load of guilttruckloads of stigma discrimination and…

Rehabilitation and Dementia: evidence and aspirations, by Lee-Fay Low

It is Day 3 of Dementia Awareness Month here, #DAM2020 and my blog is a recording of a presentation given by Assoc/Professor Lee-Fay Low on 15 August 2019. Lee-Fay is a friend and colleague helping to reframe dementia. I only saw the recording recently, and it’s given me much to think about, and to do!…

Rethinking Dementia, 2020

Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…

Questioning…

An Australian organisation called Beyond Blue which is focused on supporting mental health said in a recent article it: “Recognises and understands the feelings of anxiety, distress and concern (BPSC-19) many people may be experiencing in relation to the coronavirus (COVID-19) and offers some advice on how to look after your wellbeing.” Beyond Blue is…

Ending confinement and segregation

Ending confinement and segregation: barriers to realising human rights in the everyday lives of people living with dementia in residential aged care. This article was published on 25 Jun 2020, in the Australian Journal of Human Rights, by Linda Steele , Kate Swaffer , Ray Carr, Lyn Phillipson & Richard Fleming. Abstract: Human rights are increasingly being considered in Australian law reform…

Human Rights and the Confinement of People Living with Dementia in Care Homes

Journal article by Linda Steele, Ray Carr, Kate Swaffer, Lyn Phillipson, and Richard Fleming, published 18 June 2020 in Health and Human Rights Abstract: This paper responds to growing concerns in human rights practice and scholarship about the confinement of people living with dementia in care homes. Moving beyond the existing focus in human rights…