Online bullying…

bullyLately, yet more ‘people’ online, who asked to be ‘friends’ on Facebook, have been dishing out what I felt was some extremely personal, mean and nasty feedback. I don’t even know if they are a really the people they say they are, or are using pseudonyms. Sadly, I thought we had resolved it privately, but it seems not as there was zero response to my last private message, replying politely to theirs.

This latest attack has not been to do with language, but regardless of that, it seems the very simple things like the right to request people do not use words and language that are offensive and considered disrespectful to many of us living with dementia, when used to label us publicly seems a hard one for others to come to grips with…

These people remind me of the school yard bullies, but online, and hiding behind false names.

Opinionated, self-righteous, and downright mean. Bring it on… I can take it as there are, it seems, plenty more of you out there. I’m sure they would probably not so unkindly pick on a person person with cancer speaking out…

Hiding behind a pseudonym online… really is not so different to being a bully, except the person is being too gutless to stand up and be counted; being anonymous gives that person so much more power too, but it is pathetic person who refuses to engage honestly and openly (IMHO).

Online bullying is real, and getting worse and it needs to stop. They might think they have every right, but it is nasty, cruel behaviour, and being directed at anyone facing a terminal illness, who is simply speaking out for issues such as respectful language to be used by all, is not only mean, it is totally unfair.

We all need to think about our behaviour, even them…  they ask for respect, but do not offer it, hence are operating from double standards.

Cyber bullying is a crime, in Australia and in most countries now, and as such I have taken screen shots of everything I (and that many others) feel was a form of bullying, no matter how mild it may seem to others, in case it continues or escalates. I do have proof, and witnesses.

Coming from people in a self-proclaimed “Care Group” who seemed to have trolled the internet to connect with many of my real friends, really is a bit rich!!!

27 thoughts on “Online bullying…

  1. Pingback: Awareness campaigns can do harm #DAM2015 Day 28 | Creating life with words: Inspiration, love and truth

  2. Hi Kate.
    Sorry to hear about this.
    There’s no reason for people to do this.
    At least you’ve got screenshots and can report it to Facebook.
    I disconnected my Facebook account for other reasons.
    I’ve never been bullied on Facebook myself or if I have they didn’t do a good job at it.
    I disconnected my Facebook cause I had family and friends who would see a post by me here and there and thought they knew what was really going on in my life when they had no idea.
    I thought family and friends would ring and actually talk with me more since I didn’t have Facebook.
    I waited for weeks for them to ring me but no one did.
    Has been very upsetting and a real surprise how much family and friends DON’T contact me.
    Felling very isolated and upset at this.
    I hope things are a bit better for you now Kate that your off Facebook….


    • Hi Steve… yes, a nasty business, apparently still going on without me. Facebook have not yet responded to my complaints… not holding my breath either! Re feeling isolated from family and husband and kids, some aunts and a few cousins, my immediate family has completely disappeared. And even though I am really busy, I feel isolated and lonely in m heart… it never goes away does it 😦
      Huge hugs to you and Sonya… wish we lived closer.

      Also, you might be interested in knowing the DAI support group is going to have a guest speaker on the first Tuesday of each month commencing in June and we hope to have a neurologist or someone who can present on specific dementia such as Lewy Body. Our Cafe Le Brain which is reconvening monthly starting May 15 has a guest speaker from Queensland – here is the link to join if you feel up to it –

      We’d love you to join us; the Cafe Le Brain is not exclusive to people with dementia, although the support group is but with our partners present if we need/want them to be.


      • Thanks Kate.
        Your better off out of the issue’s you were having on Facebook.
        Silly that it’s still going on without you there….
        Nothing wrong with a good debate but bullying is a step to far.
        Yes it can be very isolating getting off Facebook.
        I honestly thought family and friends would be more engaged and want to talk more since they couldn’t now just post on my page.
        But I was wrong.
        It just made the isolation worse.
        I’m very sad at this and don’t know why they don’t call.
        If it was me I would be making an effort to talk cause it’s very possible that I won’t be able to respond down the track when my symptoms get worse…
        This is the first time I’ve felt like this.
        Obviously I don’t matter as much as I thought….
        Thanks for the link to the brain cafe.
        I’m sorry but I can’t go on there as I have very limited data on my mobile plan.
        We don’t have a land line cause it costs to much to connect….
        Thanks heaps.


      • Hi Steve… so sorry you feel so isolated and I understand the sadness about people not staying connected. I realise how few do connect, especially also after deactivating my FB account. I wish you could join the cafe online – one month we will have a neurologist speaking, perhaps a specialist on LBD as well another month. If there is a way I can connect you e.g. via a free 1800 number, would that help? Take care, and stay in touch xox


  3. Kate,
    It is outrageous that there are so many bullies in this world, who often treat others with such cruelty, because they are ignorant cowards.
    It is even more disgusting when they lash out at others for being different. People like that seem to feel better about their sour bitter existence by trying to put their misery on others.
    That type of mean spirited behaviour is not acceptable ever and noone deserves it. You certainly dont, so block them baby and if you can report them, do so.
    Rise above these trivial horrid personalities as you are so much better than that. Be an eagle my friend –
    I am also a big believer in karma!!!!! It WILL prevail.
    Love and adore you.xx


  4. Kate, you are right about some of the care groups…I saw some really nasty, mean, and hateful things on them. Bullies, of course, are everywhere in life, but it seems that the relative anonymity of the internet makes people think they don’t have to show human decency and they can say anything they want. And people get hurt by it.

    Bullying is unacceptable and I applaud you for removing yourself from being subjected to it. No one deserves that. You don’t deserve that.

    Stay strong and brave, my friend. I wish I were close enough for a coffee, but I’ll continue to follow you here on your blog until the time we can meet in person. Hugs.


  5. This post is a sad indication of the faceless, cowardly on-line bullying which has become too common these days. It brings to mind the late Charlotte Dawson who uncovered the identity of some of her on-line bullies and courageously confronted them. These individuals in person proved to be pathetic “nobodies” who were clearly taking out their own inadequacies on others (without remorse) and unfortunately on-line anonymity provides an easy platform from which they spit their venom at those so undeserving.
    These people really are not worthy of a response at all. Silence is now more often my response to such ignorance… Then again I find it extremely difficult to suffer fools 🙂


  6. Reblogged this on Generations of Caring and commented:
    Bullying is rampant both online and in real life. I totally agree with Kate and am saddened to hear her experiences. Personally I was a victim all my life, school yard, so-called friends and even people in positions of power contine to use their power to put me and others down. Several friends know my personal experience lately, therefore I stand with Kate in asking everyone to stand up to Bullies.


  7. Kate, So sorry you are having to go through this inconsiderate bullying! I agree with you that we must use a “person first” was of discussing dementia. The offensive language only serves to prevent people from taking a close look at this insidious disease and the difficulties it presents to the person experiencing it and to those who care for and love that person! Here’s to you! Keep on keeping on!


  8. I’m so sorry that you’re experiencing this … so very sorry. I have been badly affected a few times over my 16 years online …. so much that I don’t even bother posting my thoughts sometimes …. well, certainly not on Facebook as it’s easier for them to track me down!


  9. I totally agree with you Kate, years ago we all knew who the bullies were, these days they hide behind odd names, because they are terrified of being caught out
    Today internet bullying is much worse than school bullying was in days gone by.

    I hate these faceless idiots, who do not have the guts to put their names to their own comments. They are to me total cowards.

    However when their comments are aimed at those with an illness like this, and they take bullying to a new level, and one I simply cannot accept.

    We have enough problems dealing with this illness without having to deal with these cowards.

    Keep up your good work and try to ignore these people, because you are much better than them all.
    I was told yesterday that much of this stems back to jealousy, because of our high profile

    . But would we be high profile if we did not have this illness.

    Would we be high profile if we sat back and let the illness do its worst.

    No it’s because we stand up and fight, not just the illness, but we have but we stand up and fight, so that things hopefully will Improve for those following us in the future.

    It’s all happened to me before, so your not alone, we just have to stand together and put up a united front.

    I do not understand this jealousy, because we have done nothing to get this illness, it’s not self inflicted, but we are fighters.

    I sometimes get my words totally wrong and that puts a different meaning on what I wanted to say in the first place, this in turn gets me upset, but these other people do not have a reasonable excuse at all

    I admire your work and to many of us your are a star to follow. So please never give up because you are took good to allow this to happen.

    Best wishes from over the pond



  10. Kate, my suggestion would be to simply unfriend them and ignore. They thrive on getting a reaction so the best thing we can do is to behave as though they don’t exist. It will drive them mad in a way that rationale argument just cannot. Generally these are not people you would entertain in real life and in all likelihood live sad isolated lives, with online bullying being a way to address their impotence.


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