You may have already completed the Alzheimer’s Australia National Consumer Survey – but if not, there is still time.
Take the survey by clicking the following link: www.surveymonkey.com/r/consumers2016
Your views are important and Alzheimer’s Australia would like to invite as many people living with dementia and their carers to complete their National Consumer Survey.
With an election ahead of us this year, it is an important time to make sure that leaders, policy makers and the community are thinking about the issues affecting people with dementia, carers, and families. Your responses will help to inform Alzheimer’s Australia’s ongoing work to influence national policy and raise awareness about change that needs to happen.
The survey will be available until 5 pm AEDT Monday 7 March and is open to people with dementia and their care partners.
The Alzheimer’s Australia website says: “Dementia is not a normal part of ageing: it is a chronic, progressive and terminal disease. There are estimated to be 353,800 Australians living with dementia, including 25,000 with Younger Onset Dementia (below the age of 65). Read a summary of Australia dementia statistics.
Dementia is a National Health Priority Area in Australia.
Alzheimer’s Australia recognises the vital roles that general practice and primary care play in the diagnosis and treatment of dementia: from identification and diagnosis, right through to the ongoing management and care of people living with dementia.”
Thanks Kate . To many carers the internet is a vital link to an understanding community. As recommended I have completed and forwarded the survey http://www.surveymonkey.com/r/consumers2016
However I could not find the key to retain a copy for my records.
cheers from Australia,
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Thank you… and cheers from me, also in Australia
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I work as a PCA caring for folks with varying stages and types of Dementia. These people are individuals and must be treated as such so when and where I can I love to give them that extra attention though it is not easy. The limited staff means in most cases I can only provide these beautiful people with the basic care of ADL’s, meals and toileting. My wish is for so much more for these lovely folks, as I see and read about these wonderful models of care here and overseas that provides so much more individual attention to the person specific needs. This is a government issue and a private sector issue and both need to open up their moth ridden pockets and start funding better models of care.
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I hope you added that great voice to the survey? Well said!
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Just took the survey. I would guess that on this side of the world dementia looks pretty much the same as on yours. There are probably differences in how people understand or look at Dementia/ Alzheimer’s, especially in stressed countries and how “governments” help.
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Not sure it was meant for people not living in Australia… but what the heck, every voice counts! xox
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“Dementia is not a normal part of ageing: it is a chronic, progressive and terminal disease. …”
Dear Kate! I think that definition is not in your mind. The focus on disease not on people with dementia?
Am I right?
Joze
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Yes, you are right! In fact, I had not thought enough about posting that,obviously!!! but, it is a progressive, chronic terminal condition, and for all the living beyond dementia, what is ahead needs to be accepted. Worth a b log though, so thanks for highlighting 🙂
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How was or is your trip to the U K ?
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oh so busy Paul – just at Heathrow to go home now! How was tour trip away? I was thinking of you and hoping you were both ok x
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