This week my position as the second person living with a dementia on the World Dementia Council was formally ratified on the morning of February 25, during my first meeting as a member with the Council in London. I feel honoured and proud to have been invited, and to be able to represent the members of Dementia Alliance International and all people with dementia globally in this role.
“Kate’s admission to the World Dementia Council is a highly significant event. DAI has been working towards full access for people with dementia to the United Nations Convention on the Rights of Persons with Disabilities (CRPD), which is a global tool for achieving social change, this second appointment is particularly significant. Article 19 of the Convention is the right to live independently and to be included in the community. Indeed, Prof Peter Mittler is due to be presenting on this, on behalf of DAI, at the Alzheimer’s International Conference in Hungary in April 2016.
Article 29 on “participation in public and political life” enshrines an obligation for State Parties “to persons with disabilities political rights and the opportunity to enjoy them on an equal basis with others, and shall undertake to ensure that persons with disabilities can effectively and fully participate in political and public life on an equal basis with others.”
There have been many who have said well done, and who see it is a great achievement, not so much for me personally, but for all people with dementia. As always though, there are still the haters and dissenters. The lovely Georgie Crane who is also part of The Care Group on Facebook, resorted to some public nastiness about it recently on one of the posts on Facebook about this appointment. Although I cannot see it via my own Facebook page as I had to block her last year after being bullied off of Facebook, I was shown by someone else just how mean she continues to be. She certainly seems to ‘care’ about others. My husband would so love to meet her in person…