Every time I see these quotes, I think to myself, “How ridiculous, especially when we are not even close to a cure”.
After all for all the additional money spent, how many cancers have yet been cured?”
I said on Facebook I would like for us to all start being real about what we wish for, as follows:
Better access to our community
Disability support like everyone else gets
Support to live with dementia and not only die from it
Yes, this is my wish for people all with dementia. To keep even suggesting there will ever be a world without dementia is truly insensitive, and in my humble opinion, rather pointless and stupid. I really am sick of the fundraising campaigns using it too, as the money for research is not being shared enough with those who want to research for better care.
Two quotes from my post on Facebook about it are worth adding here as well;
ASB: “You’re so right, Kate. An example between a diagnosis of cancer and dementia just happened to me and M. For her cancer diagnosis she got a swag bag from the hospital, 3 ring binders filled with info on the process, cards, flowers, well wishers dropping by, gift cards and food brought in. For my diagnosis of dementia…nothing. Nothing. When I asked for rehab I was told that wasn’t done”.
SJA: Excellent mission statement! while we all want a cure or prevention treatment , priority must be to focus on the here and now.