Worrying is normal for the person living alongside a person with dementia, and as a family care partner or support person for a few people who have died from dementia I understand too well how difficult it is not to worry. When you love someone, and they are sick or troubled, not only do you…
Eat. Play. Love. Conference October 2, 2015 National Wine Centre, Adelaide, South Australia Have you ever stopped to think about what dignity means to you? And then reflected on how we ensure we are providing dignity to those we care for? Dignity in Care Australia was launched in 2011 by a small team of passionate…
I’ve been feeling really overwhelmed, and in fact, like giving up blogging, FB, twitter and all of my advocacy. As usual, if one shuts up long enough to listen, the universe supports, and today I received some very sage advice: “… honestly sometimes I think that with people with dementia that unless you give them specific things to complete,…
This is not rocket science, and the organisations promoting the dementia friends messages and campaigns, need to start within so they are walking their own talk. There is not need to ‘sign up’ to anything, just start… Take baby steps. They are not expensive and in fact, many cost no money at all, but they can make a…
Sharing the Dementia Alliance International EULOGY AND TRIBUTES TO RICHARD TAYLOR PHD with you today. Follow the link to view the recording, and read the personal messages in full, many of which were read out during the service.
I received a message on Thursday from WordPress that I had published 1337 blogs… it is slightly odd to think I had written or published so many, in under four years, and today makes my 1339th global conversation! How did that happen?! Many of them, if I re-read them sound like my writing, but I can’t always remember writing…
One of the myths of dementia is that people diagnosed with it can’t live well after the diagnosis, and the concept of maintaining a pre diagnosis life is not possible. However, ADI’s Global Charter states: I can live well with dementia. But the problem with that, is nobody, no organisations, no service providers, no doctors, no…
Thank you Mick Carmody for inspiring me today with this wonderful poem, Inability to ACT. After hosting and contributing at the online Tribute to Richard Taylor today, I am too emotionally exhausted to publish anything of my own, and this poem, which I know was a tribute to Richard, says it all for me today. This is…
This is my fourth blog on the disgraceful AFR debacle, but as they have not yet responded appropriately, I felt like writing about it again. It seems the AFR simply refuses to engage in full and open conversation about their lapse in judgement earlier this year, and have chosen to ignore those of us who have made…
Australia, and many other countries have until recently had no national guidelines for the post diagnostic support of people with dementia, which I see as more than a failing, but as unethical. However it is encouraging to be able to report that the national clinical guidelines recently drafted went out to the public for comment before they are to be finalised, hopefully by…
As I have mentioned many times since being diagnosed with dementia, I am living as if it is the Olympics of my life, and use a large number of non pharmacological and positive psychosocial interventions that have not only increased my sense of well being, they have, I believe, slowed the deterioration of dementia, and…
This quote by Danny Miller is one of my favourites, and is also used in the header of a blog I follow, The PPJ Gazette. This article although nor specifically discussing the dangers of the use of anti psychotics in dementia care, warns very clearly of the dangers of prescribing them, and is worth a…
Just for something different, I am interstate doing a few things related to dementia. This view from my motel room in Gosford today is glorious, although for most of the rest of today I’ll be hanging out in the local RSL club. As a guest in the motel of this club, I was even offered a…
I usually leave politics out of the blog, and, in fact, I am SO DISILLUSIONED with politicians from ALL parties, in most countries, that I have become a political atheist. Today, I really did think Australia would vote in favour of equality… IT IS SURELY TIME WE ALLOWED ANYONE WHO WANTS TO MAKE A COMMITMENT…
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