Introduction to Dementia Rehabilitation: This free course aims to raise awareness, change attitudes, and present evidence for the need and provision of rehabilitation as part of post diagnostic care for all people with dementia and their care partners. It is suitable for a mixed audience, including health care professionals, peopel living with dementia, care partners…
Doctored: Fraud, Arrogance and Tragedy in the Quest to Cure Alzheimer’s by Charles Miller, published by Icon Books, Feb 2025. About The Book: An Economist Best Book of 2025 So Far “For readers of Empire of Pain and Dopesick, a “gripping story of medical groupthink and warped incentives” (The Economist) that follows how Alzheimer’s disease treatment has been set back by…
As a member of the Australian OPCAT network, I’m sharing this information today. This statement is for individuals with expertise in welfare, law, human rights (particularly First Nations and disability justice), family violence and related fields to show their support. There are separate sector-based joint statements currently in the works for legal advocacy organisations and…
Maybe our whole life is an illusion, but seriously, people with dementia are definitely still not being equitably included. This is a message I received some time ago from a friend from Singapore: “Thanks, Kate for sharing this powerful quote of Saul Alinsky. This is so real and happening when it comes to people living…
Image source: https://www.monash.edu/medicine/national-centre-for-healthy-ageing/living-labs/Improving-access-to-rehabilitation-for-people-with-dementia The right to rehabilitation of everyone, including people with dementia is one of my pet topics, and anyone who’s followed me here for a while will know I’ve been writing about and campaigning for dementia to be supported as a condition causing disabilities, and for proactive rehabilitation immediately after diagnosis for all…
Dementia is not in itself a disability, but reframing the symptoms of dementia as disabilities aligns directly with a rights-based approach under the Convention on the Rights of Persons with Disabilities (CRPD), rather than just treating them as biomedical “deficits”. This graphic provides a visual example of some of the disabilities people acquire as a result of…
I’m forever hopeful of positive change… For so many things related to a dementia diagnosis, dementia care, disability support, respecful language, and ageing in general, as well as the many rights violations people with dementia continue to experience. This includes disbanding the harmful labels currently still being used to descibe people with dementia, or our…
As always, articles on language are of great interest to me, especially as I continue to hear people with dementia being referred to as ‘demented’, or as ‘suffering’ from, or ‘sufferers’. Perhaps even worse, this year ‘we’ were collectively referred to as “…the weakest amongst us…“! Frankly, this last one would be unbeleivable, if it…
2025 Research Conference of the Disability, Law and Society Network of Australia & Aotearoa New Zealand When: 10-12 December 2025 Where: Online via Zoom and in-person at University of Technology Sydney (Australia) Keynote panel: Rosemary Kayess, Disability Discrimination Commissioner, Australian Human Rights Commission Scott Avery, Professor of Indigenous Disability Health and Wellbeing, University of Technology…
I’ve thought often about the truth of this particular quote, which ironically, although most often attributed to Mark Twain, is probably not by him. In a funny twist of humour, it also highlights how accurate the quote is! Em T. Wytte blogs about writing, and I found the image used, and a blog about the…
Dementia is of course, a topic that is quite rightly covered during the World Health Assembly (WHA). Members and staff of some of the dementia charities such as Alzheimer’s Disese International (ADI) attend, host side events and so on. I’ve attended a few of them, including the 2017 WHA when the Global Action Plan on…
My usual effervescence and optimism disappeared momentarily when I learned last week that the Australian Therapeutic Goods Administration (TGA) has approved the use of donanemab in Australia. Evidence is weak for benefits, but high for serious side effects, some even causing death. It is only for people in the early stages of Alzheimer’s disease. And…
Mad in America ran a Webinar in 2024 on Neuroplasticity as a way to manage one of our greatest challenges – Protracted Withdrawal Syndrome. The presenters, as described by Mad in America, included: Ben Ahrens, a chronic illness recovery expert, TEDx Speaker, and CEO of a brain retraining program Re-Origin. This program stemmed from his…
Hello. After many months of silence here, I’ve decided my blog has been inactive for too long, and although there is no way I could go back to writing a daily blog, it is time to publish occasionally. The one I published yesterday was a draft I found from a some time ago, reviewed to…
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