Dementia through the disability lens

Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…

Brain Health, 2 D-words and HOPE

Since my own diagnosis of a younger onset dementia 13 years ago, I continue to be disturbed by the lack of recognition of dementia as a disability and lack of proactive support to live with dementia. People newly diagnosed with dementia already have their hope taken away at the time of diagnosis, so to have…

Dementia: a major cause of disability

In June 2019, Dementia Alliance International, held the first Side Event at the Conference of State Parties (CoSP) on the Convention on the Rights of Persons with Disabilities (CRPD) ever to be hosted specifically focused on dementia as a major cause disability, and our rights under the CRPD. This is important in the context of brain health.…

Dementia, disAbility and the CRPD

I’ve become increasingly frustrated that academics, service providers, advocacy organisations, dementia consultants and health care professionals refuse to include in their work, and therefore our services, that dementia is a major cause of disability and dependence globally (WHO). A few others are starting to feel my pain, and Daniela Greenwood today made a comment to…

International Womens Day 2021

Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…

New book: Wandering the wards

WANDERING the WARDS An Ethnography of Hospital Care and its Consequences for People Living with Dementia By Katie Featherstone and Andy Northcott This is an interesting and useful book, based on the wanderings of the authors and staff, NOT the patients with dementia in hospitals! This book is especially timely in light of the release…

Spaced Repetition

For many years, I have been campaigning for dementia to be managed as a condition that is a “major cause of disability and dependence” (WHO), and why people with dementia are being denied access to Universal Health Coverage including being denied proactive disability support and assessment, including rehabilitation. The following is a recording of a…

Rehabilitation: a human right for everyone

The rights of persons with dementia most often continue to be ignored, and denied. In this series of webinars, I hope this is the beginning of change, at least in one area of post diagnostic support, namely, rehabilitation. My blog today is of my presentation at this series of webinars, which were hosted by Lee-Fay…

Just because you can’t see it…

You may not believe it, or see it, but people with dementia are still being Prescribed Disengagement®, and only supported to die, rather than to live positively. You may not believe it, but if you have a stroke, you will recieve rehabilitation, whereas if you are diagnosed with dementia, you won’t. You may not believe…