Dementia through the disability lens

Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…

Dementia: a major cause of disability

In June 2019, Dementia Alliance International, held the first Side Event at the Conference of State Parties (CoSP) on the Convention on the Rights of Persons with Disabilities (CRPD) ever to be hosted specifically focused on dementia as a major cause disability, and our rights under the CRPD. This is important in the context of brain health.…

Dementia, disAbility and the CRPD

I’ve become increasingly frustrated that academics, service providers, advocacy organisations, dementia consultants and health care professionals refuse to include in their work, and therefore our services, that dementia is a major cause of disability and dependence globally (WHO). A few others are starting to feel my pain, and Daniela Greenwood today made a comment to…

International Womens Day 2021

Last week, I was pleased to be invited by the University of South Australia Chancellor Pauline Carr to attend the Adelaide International Women’s Day Breakfast, #IWD2021 highlighting women’s leadership this year. The MC was the wonderful Sonya Feldhoff from ABC Radio Adelaide, and guest speakers included Senator the Hon Penny Wong, Leader of the Opposition…

Rethinking Dementia Care by banning BPSD

Two years ago I published a series of blogs focused on the need to rethink dementia care, to reframe dementia entirely, on dementia as a major cause of disability, but most especially on the need to ban BPSD (Behavioral and Psychological Symptoms of Dementia). The Coronavirus pandemic has almost proven BPSD is a false construct,…

Rethinking Dementia, 2020

Apologies this post was accidentally published yesterday, when is was meant for today, day 2 of #DAM2020! Arrgghhhh! It is easy to hit the wrong button! Anyway, onto much more important things. The need for everyone to rethink dementia continues to be highlighted in the many stories of neglect, abuse, restraint and deaths in Residential…

Communicating with people with Aphasia

I recently put together a list of tips for communicating with people with aphasia (and dementia), which were published as part of a blog for Dementia Alliance International; I thought it would be useful posted here. It has become more important to me lately, as my language, speech and communication is changing, and I am…

The Routledge Handbook of Disability Activism

The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they…

The 20th century view of dementia continues…

Try as I might, I am currently really struggling to convince a group of global researchers on the importance of adding two simple things to a list of possible interventions following a diagnosis of dementia. It has got to the point, I feel discriminated and stigmatised by them, as most in the group generally seem…

Setting up an exercise plan

I subscribe to many newsletters, possibly too many, but it is easy to delete them if they are of no interest.  This one came in today from the National Institute on Aging at the NIH, and as I am about to embark on a more disciplined exercise regime again, I thought it was useful. One…

Rehabilitation for dementia: Evidence & Opportunities

Following on from yesterdays blog, I am today highlighting a very important and relevant Dementia Alliance International (DAI Webinar that is on later this week. Our presenter is Associate Professor Lee-Fay Low from Sydney University, presenting Rehabilitation for dementia: Evidence & Opportunities. It is one event, set in different time zones. See below for the times and register…