Disability-Led Theatre Company Abundability Productions Returns to Adelaide Fringe If you are coming to the Adelaide for the Adelaide Fringe, I look forward to seeing you at the first night of the expanded season of OUTSIDE IN! Gold Coast–based disability-led theatre company Abundabiliteez Productions returns to the 2026 Adelaide Fringe with an expanded season of OUTSIDE IN at Nexus…
Following on from my recent short blog about the book and mini-series, Dopesick, I am writing about having an existential crisis… For many years, and with each new year now, I’ve had an increasing feeling of pessimism about the lack of change from my activism, or the advocacy and activism of so many others, especially…
I’m forever hopeful of positive change… For so many things related to a dementia diagnosis, dementia care, disability support, respecful language, and ageing in general, as well as the many rights violations people with dementia continue to experience. This includes disbanding the harmful labels currently still being used to descibe people with dementia, or our…
I’m motivated to post a blog here today because of an article I read written by Dom Kelly, who is a co-founder of the New Disabled South, an organisation devoted to fighting for people with disabilities in the South, where issues like poverty, voting rights, and criminalization disproportionately impact the disabled community. In Australia, these issues…
For almost 15 years, I’ve been campaigning for ALL people with dementia to be advised the symptoms of dementia are acquired disabilities, not only a death sentence, and for all people with dementia to receive rehabilitation, immediately after diagnosis. This is to support, and even improve cognitve and functional abilities, as well as improve our…
The University of Wollongong (UOW) has developed a program to ensure their community of students and staff are included, valued and respected. This is so much better than the dementia friendly initiatives, which has done so little to improve the respect and inclusion of people with dementia. Not have these initiatives reduced the stigma, discrimination,…
This report is the 2022 Assistive Technology Report released by the WHO and UNICEF. CBM International also contibuted to this report. Some major points highlighted by the WHO include: Almost one billion children and adults with disabilities and older persons in need of assistive technology are denied access. Let’s not forget this figure includes more…
Over the last fourteen years, I have moved from the loss of hope and the desperation caused by the Prescribed Disengagement® given to me by everyone except my neurologist after the diagnosis of a rare younger onset dementia. Disturbingly, I’m acutely aware this prescription of disengaging from our pre diagnosis lives is still being handed…
Please consider registering to attend this important event; even if the time does not work for you, once registered, you will then receive the link to the recording afterwards. You are also invited to share it amongst your professional and other networks. As you know if you follow me here, my focus is on improving…
Ok, so it seems I am focusing too much on what is difficult, or painful, or that I really really really dislike! On the weekend, it was the progessive annoying cognitive disabilities due entirely to dementia that caused me to feel bereft and angry. Last night, and today, I’ve decided I hate osteo arthritis… Which…
It remains a high priority of mine, hence I have been campaigning for the deinstitutionalisation and de-segregation of people with any type of dementia of any age, and in fact, anyone of any age living in residential care for many years. This includes ‘memory units’ and ‘dementia villages’. Although two of the following Transforming Communities…
By highlighting dementia as one of the many health conditions causing disabilities, I am joining the more than 1 billion people with disability campaigning for change! It is your chance to make history; to help make a lasting change for 1 billion persons with disabilities worldwide, and I invite you to join the #WeThe15 campaign.…
Whilst not specifically about Brain Health Awareness, I’m sharing a recent interview, which is 100% relevant to hope. I was delighted to be interviewed for the Aged Care Enrichment Podcast series, brought to us by SilVR Adventures and with their host Ash de Neef. It’s available wherever you get your podcasts from ⬇️ 𝗟𝗶𝘀𝘁𝗲𝗻, 𝗦𝘂𝗯𝘀𝗰𝗿𝗶𝗯𝗲 𝗮𝗻𝗱 𝗦𝗵𝗮𝗿𝗲 ⬇️…
In June 2019, Dementia Alliance International, held the first Side Event at the Conference of State Parties (CoSP) on the Convention on the Rights of Persons with Disabilities (CRPD) ever to be hosted specifically focused on dementia as a major cause disability, and our rights under the CRPD. This is important in the context of brain health.…
I’ve become increasingly frustrated that academics, service providers, advocacy organisations, dementia consultants and health care professionals refuse to include in their work, and therefore our services, that dementia is a major cause of disability and dependence globally (WHO). A few others are starting to feel my pain, and Daniela Greenwood today made a comment to…
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