Charles and Nana Enjoying special times At the Adelaide Cancerian Club The Club’s 21st Nana’s 80th year A son and grandson’s 24th birthday And my 56th year Such a lovely celebration With three generations It seemed impossible we could All be 21!
It has come to this Whether or not to write my Candid daily blog!
When I discovered People with dementia did not have a voice I had a dream When I experienced The stigma, discrimination and isolation of dementia I had a dream When I realised that most of the support available was for carers And what support was available to people with dementia Was overtaken by others I…
It is a year for dreaming A time when we can feel Real change in the air Many moments of unrest And disillusion Interspersed with excitement Dreams turned into a reality The Dementia Experts Speaking out for themselves and for Other people with dementia T-shirts for supporters Asking them to See the person, not the…
Who’d have thought I’d be involved in such a thing Motivating conference attendees to start tweeting Spot the long suffering husbands Sitting in the ADI2014 conference auditorium Waiting patiently for rowdy wives to do their session Social media for improving dementia care Helping to increase the revolving doors between Researchers and patients That treacherous and…
Re-blogged with permission from a friend Ken Clasper’s blog, Living well with Lewy Body Dementia. Ken told me a little about where it came from: Please feel free to use this, because it came from my Mother. It has always made me think, when I read it. … my son and daughter have read it…
Like new love The first roses Seem the sweetest The first flush Of colour and scent Matching the twang Of our heartstrings Beating frantically With new love Rapturously circling Our brain and heart With wonder
Here I go again Back to studying My days seem longer My brain is stronger It may not cure me But will sustain me With lots of thinking And not much drinking Except for herbal tea And lot of nuts and seeds More fun than silly games There may be brain drains But meaningful engagement Real…
Vacant spaces Tucked inside my head Rapturously entangled Around my thoughts Floating away Somewhere in the universe Never to be found again Or simply hiding from my Current existence Who knows
Geoffrey Gurrumul Yunupingu Has crept into my soul Blessed are we for his beautiful voice More blessed am I to have hearing His blindness there for all to see Not stopping him living a good life Perhaps inspiring him to be More inspired than others It was my very great fortune To have witnessed him…
My idea of a Saturday After a very busy week Although the shift workers May not agree Today Saturday All I want to do Is sleep!
A new sign Rests above this poem “Keep calm and Don’t fall over” For falling over Is my latest new trick Not like in the circus But down the stairs Or over my own feet A new clumsiness Changes in my vision Increasing the worry factor For one very dear husband And renewed feelings Of stupidity Even…
t e a r d r o p . a tear falls upon her cheek then another and another there is nothing she can do no end to the tears inside her heart the expression of her deep sadness her mind awash with fear and dread of the internal drought that is to become her…
In the heat of the day Temperatures soaring Safely nestled inside My beautifully air-conditioned Room with a view Lucky beyond words Swimming costume calling Water inviting Waiting for the shade To cover the pool Before the hot summer sun Lays down to rest
There has been a list of notices inviting People to attend dementia seminars “How to manage wandering“ It may be rather obvious soon They are very annoying And insulting I am not a wanderer Nor am I wandering I am a person… Sometimes people like to go for walks Even people with dementia Sometimes people get lost…
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