Hope in dark times

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This article was exactly what I needed to read a few weeks ago, especially after feeling such angst, despair and frustration about people without dementia, continuing to exclude the group I represent. The phrase, Nothing about us, without us (apart from helping to get funding applications approved – where we are more often still the tick box of inclusion)” is still so far from a reality it can become disheartening.

Full engagement and proper inclusion, of people with dementia, in all things, is simply not happening. This is in part, why we have headed to the UN CRPD to use it as a tool to enforce the much needed change, and also why Dementia Alliance International (DAI) will never be run by people without dementia, no matter how hard it is for us to run it ourselves, and no matter how many people set up in competition or opposition, or misuse our data base or infiltrate the members of our Facebook or other groups to gain access to people with dementia.

DAI is fast becoming so much more than an Advocacy and Support group; of, by and for people with dementia, it has become a growing movement for social change for people with dementia, and we have barely started.

11 thoughts on “Hope in dark times

  1. Kate, there has been huge change around dementia on the world stage in the past 2 years, much of it thanks to your strategic leadership.
    If we #KiamaDAGs can fire up one another’s passion when energy is low and make real difference to the lives of people living with dementia in our communities then our hope is real and grounded.
    Much love to you sista. xx

  2. Kate, you keep me in line when it would be easier to slap a label on dementia that is the norm. We all have a mentor and you are one of mine.
    When I get “lost” in my confusion, I get a nice slap of “remember what I truly believe” from across the pond! 🙂

    • Ditto to that Paul… your tenacity with supporting Maureen to live, not only die is uplifting, albeit extremely tiring for you. Always happy to support you in any way – I have felt a little ‘lazy’ not writing daily bogs lately, as know you find them helpful… not meant to let you down, just been either unwell or too busy

  3. I love your spirit and defiance ❤

    I'm also curious to know to whom you refer when you speak of "competition and opposition?"

    I'm wondering why there can't be cooperation, co-opetition and collaboration to create a stronger collective voice…?

    Susan

The only thing missing in this global conversation is YOUR voice... Thank you.

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