It is a big week for DAI members in the UK as today is the beginning of Dementia Awareness Week in the UK. To coincide with it and the acceptance of a human rights approach to dementia by ADI and the ADI Council members in Budapest, Dementia Alliance International is releasing its first official publication on human rights for people with dementia.
Image: Professor Peter Mittler and Kate Swaffer ADI2016 Budapest
Ps my weekend has been one of ups and downs – including accidentally deleting a whole folder (or more?) of emails, thinking it was my deleted folder! Oh well, if anyone is expecting a reply from me, and it hasn’t arrived, you now know why!
The Twitter hashtags for the DAI Media Release are #DAW2016 and #HumanRights4PWD. You can read the official Media Release below.
There are currently more than 47 million people with dementia globally and one new diagnosis every 3.2 seconds[i]. There are 850,000 people in the UK who have a form of dementia[ii], more than 5 million[iii] in America, and more than 353,800[iv] Australians with dementia in Australia. If dementia were a country, it would be the 18th largest economy.
Dementia Alliance International (DAI) is an advocacy group, the peak body and global voice of people with dementia. Our mission includes Human Rights based approaches that are applied to the pre and post-diagnostic experiences of people with a dementia, in every way. We advocate for a more ethical pathway of support that includes our human right to full rehabilitation and full inclusion in civil society; “nothing about us, without us.”
“We are launching this landmark Dementia Alliance International guide because, as a direct result of DAI’s advocacy and a rights-based approach including access to the United Nations Convention on the Rights of Persons with Disabilities (CRPD) has just been adopted by Alzheimer’s Disease International. This is a watershed moment for people with dementia across the world.” Kate Swaffer
The human rights of people with dementia lie at the heart of our work. Access to the UN Disability Convention was one of the demands made by DAI’s Chair, Kate Swaffer at the World Health Organisation’s First Ministerial Conference on Dementia held in Geneva in March 2015. Since then, we have done everything we can to make a reality of that demand.
“What matters to us now is that people living with dementia should be empowered to use their undisputed right of access to this and to other relevant UN Human Rights Conventions, including a future Convention on the Rights of Older Persons.” Professor Peter Mittler
You can download a copy of our publication here: Human Rights for People Living with Dementia – Rhetoric to Reality
Plus you can view a video of Glenn Rees, me and Peter Mittler introducing the need for a human rights based approach to dementia at the recent ADI Conference in Budapest on the DAI website and YouTube channel.
Membership of DAI is exclusive to people with a medically confirmed diagnosis of dementia. To join our exclusive club or to join a support group, visit us here www.joindai.org.
Kate Swaffer, Chair, CEO, Co-founder of Dementia Alliance International and author of What the hell happened to my brain?: Living beyond dementia
[i] World Health Organisation, Dementia Statistics (2015) http://www.who.int/mediacentre/news/releases/2015/action-on-dementia/en/
[iv] Alzheimer’s Australia (2016) Key Statistics, https://fightdementia.org.au/about-dementia/statistics