This is the most common thing I hear from people about my diagnosis of dementia, and is possibly the most common others with dementia talk about. Even some people with dementia say it to me; yes, even when they themselves know how insensitive it is to hear it said. It is an odd conundrum, and one…
One of the biggest challenges for me is letting go of the abilities I once had. Yes, I know it is easy to say, “but you can still do so many things”, but let me just say how devastating it is having to let go of functioning. I am not talking about physical functioning, as…
I’m re-blogging a post from a blog I read called Memory Issues, written by a loving and enabling husband Paul, who is the care partner for his wife Maureen. I really respect his willingness and creativity, to allow his wife to be as enabled to live her life, as well as possible. Often, what I see…
After my blog yesterday, talking about safety vs autonomy, and my feelings about the traditional styles of residential care, I felt it important to also say, there are many in the sector wanting to improve things for people with dementia and their families. There are, as highlighted in some comments, many family care partners who…
What can i say… well not that much today, but, I am delighted to report I have been in a teleconference for over an hour discussing a research project around the theory of Prescribed Disengagement™. Woo Bloody Hoo! I really do have a lot more to day on this, but this slide for now says…
Australia, and many other countries have until recently had no national guidelines for the post diagnostic support of people with dementia, which I see as more than a failing, but as unethical. However it is encouraging to be able to report that the national clinical guidelines recently drafted went out to the public for comment before they are to be finalised, hopefully by…
