Obviously, I rarely blog here very often any more, as I have taken the activities of Living beyond dementia to a whole new level! In fact, I have not written even a monthly blog on that site or on my recipe blog since August!! In October, I posted four blogs here, and in November, so far, only two! It could easily feel like I am ‘failing my blog readers’, but in reality, it is probably a huge relief for many who are subscribed to it!
Please note, I do not feel like a failure, at blogging or in life, although my health and cognitive capacities are definitely failing me!
Anyway, enough rambling, today, I am highlighting an article I’ve just read written by someone living with Asperger’s, and it felt a lot like many of the issues I feel I face living with dementia, and also, that it appears others with dementia might be facing. As always, I’d appreciate your feedback and thoughts on it, esPecially if you think I am barking up the wrong tree!.
If we seek to understand living with dementia differently, then perhaps we can better support people living with it, or even live more easily with it ourselves…
By Anonymous, on Quora, posted February 1, 2015
You have absolutely zero social intuition (and not just that – but you don’t even notice the social cues that allow you to develop that social intuition).
As a result, every social situation feels like a potentially awkward situation where you don’t know what to do or say (especially when it’s so hard to enjoy the things that other people enjoy – and forcing yourself to enjoy what they enjoy doesn’t work at all either).
This immediately resonated with me, as does the beginning of the next paragraph:
It also results in a considerable amount of habit inertia – it is difficult to change your habits, and you often have to be warned/reminded several times about one of your habits before you can finally internalize what people tell you, and finally change your habits (if ever).
The third paragraph starts with:
Also, it means that you “march to your own beat”. Most people seem to have internal forcing functions that make it easier for them to march to the beat of other people (or “synchronize” with them).
Further on in the article, it says:
The other thing is that it’s often profoundly isolating to realize that almost no one in the world is going to fully appreciate the obsession that you have with your particular set of interests (and with the particular details about your interests, too).
Do read the whole article if this has caused you to sit up and wonder if living with dementia is even remotely like developing and therefore living with Asperger’s.
It often does feel profoundly isolating, but as Simon Baron-Cohen once said on, the Internet is super-liberating for all of us.
People with dementia who are able to access the Internet have certainly found it totally liberating and supportive; it reduces our isolation, even if it only means we read or watch things online. It does though, also mean we can support each other, as Dementia Alliance International does so well every and every single week in a number of different time zones with its online support groups, cafes and other events. People with dementia can join us here…