Change is almost always difficult for people, and the wave of change via the voices of people with dementia is quickly growing. In fact, getting dementia might mean we are lucky, as we are getting used to change now, as it is happening inside our brains and bodies every single day. On top of that,…
Working in a not for profit organisation, and as an advocate and activist for people with dementia, I have seen in the sector, and of course, in all other sectors I’ve been involved in, some huge egos. One interesting challenge people with dementia are facing is more than other peoples egos though, it is our…
There are those who would say it is simply not possible to build capacity in people who are losing capacity, and yet, there are many people with intellectual disabilities, or changed cognitive capacity including people with dementia, who have learned new things, and who have learned to do things differently in order to continue to function. It…
Rest In Peace dear Gayle, and may your family find peace in the support your friends, and many living in Australia have given you. Today, I am sharing her funeral service held at Stansbury on Yorke Peninsula yesterday. Please note, this video will only be available to view for a few days. Thank you McQueen Funeral…
Read About The Anti Depressant Scandal In “The Emperor’s New Drugs”, And Research One Old Drug – which surely applies to the use of anti psychotics in dementia… written by By AZ Desert Rat and published on Monday Nov 26, 2012 on DAILY KOS Key excerpts from “The Emperor’s New Drugs: Exploding the Antidepressant Myth”…
Obviously Irving Kirsch is well ahead of his time, and I feel ignorant having not ‘found’ him until connecting with a man, now a good friend who lives in the UK and writes an inspirational blog about his experience as a care partner for his wife. Thanks Paul!
Consumer engagement has been an overused catchphrase the last few years, especially in the medical conditions or diseases sector. Often, receiving grants now depend on an organisation or researcher engaging with us. There is also a significant amount of intellectual property to be gleaned (for free, and often not acknowledged) from consumers, and high profile consumer engagement can…
Written for and published first for The Aged Care Report Card and their news site RetireNCare on Apr 11, 2016, is my article below: We need dementia enabling. The time is now that the aged and dementia care sector not only provides us with better residential care, but the whole sector finds a new way…
Obviously, I am not blogging very often lately, mostly due to my brain being unable to focus on more than my new studies, and DAI matters. However, as requested, attached is an updated PDF version of the model of ‘care’ vs the pathways of disAbility support I advocate for, which people with dementia have a human right…
This article was exactly what I needed to read a few weeks ago, especially after feeling such angst, despair and frustration about people without dementia, continuing to exclude the group I represent. The phrase, Nothing about us, without us (apart from helping to get funding applications approved – where we are more often still…
~ ‘PECKER’ BRIDGE ~ Apparently no one considered the sun when designing this wall…… Anyone want to take a guess where this wall is located? …scroll down . . . . ‘SAINT PETER’S BASILICA’ Now, I don’t care who you are, THAT IS funny!! Sincere thanks to my good friend Glad-bags for this via email yesterday.
As promised on Monday I am adding these two pathways again, in a different format, and in the hope they are able to be read. The first is the Medical model of ‘care’ currently still offered as the post diagnostic pathway to people with dementia, which simply supports Prescribed Disengagement® alongside the following is the Social/disAbility pathway…
In honour of a family friend, fellow nurse, daughter, wife, mother, aunty, and best friend, Gayle Woodford (nee Thompson), please, if you are a nurse, anywhere in the world wear a black arm bank in honour of Gayle today. Please also consider signing the petition for the safety of all nurses as well: “Remote Area…
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