The following are the two pathways of support published in my book, (Swaffer, K 2016, What the hell happened to my brain?: Living beyond dementia, Jessica Kingsley Publishers, p.p. 165-166) that many have recently asked me for. So, in case you simply wish to refer to them, I am adding them from a set of power point slides that…
Harry Potter and the Dementors is a topic I have written about before here, to describe the feelings I still sometimes have about the effects of having dementia. The Power of Language and dementia, language and respect, and language in general and the rights of people with dementia to decide what is and what is…
Last week, I was privileged to be one of 17 people with dementia to participate in a Parliamentary Summit, alongside 44 family care partners, the CEO Carol Bennett, President Graeme Samuel and a number of staff from Alzheimer’s Australia. From the media release: “The Communique has been developed by consumers from across the country attending…
No time to wait People with dementia Must no longer be willing To accept the disrespect The exclusion Or the passive stigma Still so evident in our educated society If a group of researchers Or any other group Who have been saying They respect us And that they include us Who are very happy to use us And…
No, I am not just over-tired or feeling a bit burnt out, but I am getting very annoyed at having to continually ask why, yet another group organising an event has published a list of speakers (yes, again), the topic of Consumer Directed Care, and yet, did not bother to invite a speaker with dementia, the very cohort…
I’ve had an interesting, if somewhat curious end to my day, one with a conversation with a lovely blog follower whom I actually got to meet in person, and who quite remarkably knew of the religion of Coonyites. This is the first person, beyond my childhood who I’ve met that has heard of this religion, which…
Media Release 10 March 2016, re-printed here with permission: People with dementia call for action on National Dementia Priorities More than 70 people living with dementia and their carers will come together in Canberra to identify key priorities and call on politicians to take action in responding to Australia’s growing dementia rates during a two-day…
It never ceases to amaze me what I end up getting involved in! After asking Dr Mark Cross not to use one word on a Facebook page he had set up, we have connected, met over dinner, and are involved with a wonderful producer Alison Black in filming a documentary called “The Last Laugh”. Here is…
I am delighted to share this very short video about Group Homes Australia, the one residential dementia and aged care group home I believe I would be happy to live in… and I would also love Maria who works there, to look after me! I don’t usually so actively promote private or any businesses, but this one is…
My ability to blog every day has been thwarted lately for many reasons, none of which I have the capacity to write about at the moment! However, I want to invite you to attend the next Dementia Alliance International (DAI) “A Meeting of The Minds” Webinar on 23/24 March 2016. Our guest speaker is a supporter of…
Well, my name is Kate Swaffer I am not very tall My hair is short and slightly greying Very fine hair that I prefer is blow dried every day to give it some shape. My husband and two sons are my best friends And I am lucky, I have other special friends Many new ones…
This week my position as the second person living with a dementia on the World Dementia Council was formally ratified on the morning of February 25, during my first meeting as a member with the Council in London. I feel honoured and proud to have been invited, and to be able to represent the members of…
You may have already completed the Alzheimer’s Australia National Consumer Survey – but if not, there is still time. Take the survey by clicking the following link: www.surveymonkey.com/r/consumers2016 Your views are important and Alzheimer’s Australia would like to invite as many people living with dementia and their carers to complete their National Consumer Survey. With an…
This is a study currently being conducted by the Royal District Nursing Service (RDNS) Institute, and I am sharing here today to assist them to find more Australians willing to participate in the study. I don’t share too many research opportunities here, but anything to do with wellbeing and personal choice is…
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