This may not be such a positive blog today! I have a private blog called ‘What the hell is happening to my brain?’, which many of you know is also the first part of the title of my book soon to be released, and I may have even posted at least one blog with that title before today.…
My blog today consists of some quotes from a blog I read, about the rights of people with disAbilities, the World Health Organisation determination on Discrimination, and my thoughts on all of this in relation to people living with dementia. People with dementia are currently advocating for inclusion and recognition under the United Nations Convention of the Rights…
Very humbled and proud to be announced at the International Dementia Awards in Birmingham UK, as the Dementia Leader of the Year at the UK Dementia Congress 2015 conference. There have been loads of tweeps out there congratulating me, which is also how I found out; I have only posted three of them. Thank you to everyone for…
After my blog yesterday, talking about safety vs autonomy, and my feelings about the traditional styles of residential care, I felt it important to also say, there are many in the sector wanting to improve things for people with dementia and their families. There are, as highlighted in some comments, many family care partners who…
I’ve been asked to write from a consumer’s perspective about whether I think the views of people with dementia could influence the design of residential aged care, and if there is a difference between the view of people with dementia and their families about what a care home should be like. It has been a difficult task, and is for…
For those of you who have not yet subscribed to the Dementia Alliance International weekly blog, I’d seriously suggest you do. This week, we had the honour and great pleasure of hearing from Professor Steven Sabat. To hear it, please follow this link to our blog with the recording of it on the website there. For those of…
Yesterday, it was announced in the media I am one of four SA finalists in the Australian Of The Year Awards. This was for me, incredibly humbling, and also incredible to be recognised for my advocacy and activism for people with dementia, both here in Australia and globally. I don’t do this for money, and am almost…
A beautiful Obituary for my friend Michael Horvich’s partner Gregory Maire 1948-2015… I especially love it as it clearly describes how Gregory “lived very well with Alzheimer’s”. I know it is not always easy for others, or even some people diagnosed with dementia to believe this is even remotely possible… but there are many who not only…
ADI have a charter “I can live well with dementia’ – but still, no-one is telling us how to achieve it, or even that it is possible. For this International Charter to have any traction, people with dementia believe everyone, include their work. I’m also unsure this phrase is helpful, as living beyond dementia seems…
If you search in googleimages.com for an image to match the term ‘Day Care’ you mostly only find images for children day care services and centres, as per this image I have added today! I wrote the following for a friend and colleague, to read out at a conference who is attending soon with an audience…
Today I am posting information from the Alzheimer’s Society UK website, on risk factors for dementia. Research has identified many risk factors associated with dementia. It’s impossible to eliminate every single one; after all we can’t avoid age, which is the most significant. Medical conditions such as diabetes, stroke and heart problems, as well as…
Thanks to my good friends, Lynda and Veda from Gerringong in NSW, near Kiama, I have been alerted to the following resource on Frontotemporal Disorders. Do follow the link to the full article, but I have added most of the text below, as well as a table which simplifies it. Special thanks also to Lynda for your hard…
Just for something different (!?), I am going to once again discuss the topic of being a care partner of a person with dementia, of which there are more women than men, and the reality that the person living with someone who is diagnosed with dementia, is not living with dementia, but instead they are living with someone diagnosed…
This was brought recently to my attention via social media, either Facebook or Twitter, although I can’t remember which one. I had not heard of the word, or did not remember it, which is not the issue here, but the meaning of the word has been playing with my heart-strings ever since. Initially it brought…
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